I'm a 41 year old who has had chronic ITP for 23 years, with periods of remission, mainly when I was pregnant.
Initially treated with prednisolone for 6 years roughly, then had my spleen removed, no joy with that one!!
Tried rituximub but had a allergic reaction to that! After that, went on to romisplostim which worked for a couple of years but the last couple of months my count started yoyoing between 20 and 700 within a week...
The last 2 weeks, I started on lowest dose of eltrombopag. After 5 days of taking it my count rose to over 1400 and a week later still rising even though stopped taking. Potassium levels also rose very high.
Consultant waiting for count to drop to decide where we go from here.
Has anyone else had similar experience with this?