Trying out different vitamins

[Lynwoodley]

My original count was 33 when o found out I had ITP about 9 weeks ago I looked up many items on ITP and some said diet and vitamins helped. I thought I would give it a try. I totally changed my diet and stopped drinking alcohol I don't know if it is a coincidence or not as I know they can jump up and down randomly but The first week I took multi vitamins and omega 3 fish oils my count went up to 44 the second and third week I added papaya extract and the count went up 46 then 47 I then added vitamin C 4th to 7th week it was 52 week on week 7 I also drank a lot of orange juice which I have since found out is not good for ITP week 8 I stopped taking omwga 3 fish oils and drank about 2-3 glasses of fresh orange juice a day week 8 my count went down to 40. I then stopped the orange juice started taking the fish oils again but added folic acid and aloe Vera tablets week 9 My count has gone up to 80. I will update again next week

[M_Umar]

thank you so much for sharing your experience...please keep updating us about your vitamin's jounery

[Rafiq]

Hello Lyn,

Thanks for sharing your experience. I use papaya leaf extract in tablet form and I would like to know where you get papaya extract from please.

Thanks.

Rafiq

[sharroN42 in reply to Rafiq]

I buy papaya leaf juice from Herbal Gooness, a US company. You can order it from them or through Amazon. Usually cheaper from the company as they have sales, especially around holidays. The US Thanksgiving is coming up so it might be discounted.

[Lynwoodley]

Update as promised on taking vitamins. Since I added folic acid and Aloe Vera in the last 2 weeks my count went from 40 to 80 the first week and this week it's up to 81 so it's worth a try

[prish]

Hw to take aloe vera...my daughter of 10 is an itp patient pl guide.

[Lynwoodley in reply to prish]

Hi I take a tablet form but they do a juice as well you can get from Health shops or online drone Amazon

[holcotts]

Thanks Lynn, so useful. Can I ask what you eat?

[Lynwoodley in reply to holcotts]

I have totally changed my diet. Before I ate I lot of sugary things Cakes and chocolate ect. I have had a food intolerance test done last week and found I am totally intolerant to red and white wine, coffee, all citrus juice and fruits, cheese, and all artificial sweeteners that are in diet drinks, luckily I cut those all out when I found out I had ITP as it says on the websites they are not good for ITP I now eat lots of green vegetables and white meat and salads I have changed to brown bread but don't eat a lot. I eat apples, bananas and beetroot it's good to look at the site for foods that are good and bad and tailor your own foods I have much more energy now so hopefully it's working and the bonus is I've lost 3 kilos in weight

[Topography52_-]

I don't drink , I don't smoke ,I do not have saturated fats ( I have high cholesterol on tablets ) I don't eat pork, beef , only certain things I eat , as my diet has to be healthy my only vice now / again chocolate I drink tea , coffee.

So all in all I would say it is not too bad will look at the site for more advice ,thank you : )))

[ghostthemovie]

Thank you. I heard omega 3 fish oils were not good bcuz they’re a natural blood thinner. Not sure if this is correct. I get so frustrated bcuz of so much conflicting info. It’s good to hear from people like yourself who is providing info first hand.

[Pebblegrant in reply to ghostthemovie]

I to had read that omega 3 fish oil wasn't recommended.🤔 I am currently taking papaya leaf extract. My platlets are running at 44...i had dipped to 19. Not sure if the jumps down to papaya...but im sticking on it..👍😁

[Pebblegrant]

The post is five years old but still very relevant. It's inspired me to try upping my vits and trying new ways to tackle ITP . It cant do anymore harm than the horrible steriods on offer!!. Just placed an order on Amazon. 👍😁

[Lynwoodley in reply to Pebblegrant]

Hi I have recently added chlorella tablets(about 3 months) as my platelets dipped a few months ago to 23 and there was talking of putting me on steroids which I don’t want to do after reading about them I thought I would give it a try as they gave many benefits including helping your immune system the platelets have gone up to around 40 now whether coincidence or not I don’t know but I also had very high cholesterol and it helps that as well I get mine from Nutriseed

healthline.com/nutrition/be...

[Pebblegrant in reply to Lynwoodley]

Thank you for the update ❤. Glad you've seen a rise, steriods are so not good!! Why there the first line treatment lord knows?? Money?? But thats a whole other issue 😊😊. Mine dropped when i tappered off and at 36 the hemo wanted to put me on a 2nd line, which is made for ITP..cant recall the correct spelling..but its something like enthpolog.?? 😊😁... but...i still wanted to try papaya, yoga, meditation , so i got the tabs and held off taking them. They were-are my safety net. If i get mad bruising or bleed ill take them. Still can't quite belive this condition was out there and i knew nothing about it until my tango 💃💃😁 with it. 🙏❤. Fingers and toes crossed your numbers rise..X

[Loftyc]

Thanks for that I may try Aloe Vera, currently weaning off steroids am funded for IVIG for the next 3 months and am desperate to avoid the 2nd line treatmentsThis is one very strange condition 🤷‍♀️

[Lynwoodley in reply to Loftyc]

It certainly is but since I got ITP (July 2016) I have managed to dodge all treatment if my platelets go too low and they suggest Steroids Etc I just have another blood test a couple of days later and luckily so far they have gone up enough to keep the dreaded treatments at bay 😉