Hi I'm new and a bit lost and I guess looking for input/help/someone to listen. My 5 month old baby girl has ITP. Has done since she was 2 months old. For two months she pretty much had no platelets, not low - almost none. They'd see an occasional one (nice and fat) on the slides, but she wasn't responsive to either steroids or IVIG, other than to control the 'spontaneous' bleeding (and that still look weeks). Took her off steroids and she'd start the bleeding again (mouth, nose, eyes, skin), requiring more hospitalisation. We're now in the third month - with ongoing IVIG she's able to get up to 40, but every time she gets a cold they disappear (I also have a toddler in childcare who keeps getting her sick). I'm worried about teething - I'm worried about her learning to crawl and then to walk with no platelets. Has anyone else experienced a baby that may or may not be getting better?
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