Anyone from Ireland?

[RebeccaM]

Hi, just wondering if anyone here is from Ireland and if they know if there is a ITP group or something that does awareness things and fundraisers for ITP.

Thanks xx

[Donegal]

Hi. Delighted to hear of someone over here. Two of us are trying to set up a support group in Letter kenny for Chronic Leukaemias at the moment. Do you live up this end of the country? Regards

[RebeccaM in reply to Donegal]

No sorry Im from Drogheda, hmm but thats Leukaemias im sort of looking for just ITP. Theres very little going on in Ireland for this it seems. O.o I cant find anything on the internet

[Snow52 in reply to RebeccaM]

I was just diagnosed with ITP this week , just getting use to it. From Dublin.

[owenm]

There are several of us from N.Ire and Ive met a few from the South who have attended the ITP Support Association Convention over the last few years.

Is it yourself with ITP or are you looking to fundraise on behalf of someone?

Owen

[RebeccaM in reply to owenm]

It is me with ITP well i dont necessarily want to fundraise i just feel like there isnt enough awareness out there for ITP. Dont get me wrong if a chance came up to fundraise i would

[owenm in reply to RebeccaM]

Awareness is a tricky one, as every disease and disorder is vying for public attention. Cancer obviously touches a great number of people, and receives huge amounts of money through it's campaigns.

I firmly believe that the itp support assosiation together with the Northern Ireland Rare Disease Partnership are working tirelessly in my favour and I do try and support as much as I can.

I believe that grdo.ie could be a potentially favourable call for you, and if we can find sufficient numbers we could maybe arrange an Irish ITP event through/with the ITP Support assoc.

Owen

[sharon1982]

Hi im from wexford and have had itp since I was 7 and am now 31 . I have had it for over 20 years and have heard of no support groups . In england they seem to have some and even have a support bracelet . Its a pity because we suffer as much as any 1 else but there seems to b no support

[lilybird]

Our daughter is in her early 20s and has just been diagnosed with ITP.

[noni14]

Hi Im in Dublin, very new to this whole ITP world, diagnosed in May. Finding it extremely difficult to find any support groups or any additional info at all. Suffering horrific pains with my meds being tapered down again. Very difficult to know whats "normal," and whats not because thr hospital, and my g.p are giving me different opinions and advice.