Anyone sleep 14 hrs per day post 5 week coma? - ICUsteps

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Anyone sleep 14 hrs per day post 5 week coma?

Beagledog profile image
10 Replies

5 week coma 5 years ago. Ever since I consistently sleep 14 hours per day. Heard of anything like that?

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Beagledog profile image
Beagledog
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10 Replies
Sepsur profile image
Sepsur

Was it a head injury/trauma that brought you to ICU?

Ive heard of people sleeping loads after a brain injury/operation.

I had the reverse problem. When I woke, I didn’t sleep for 3 days solid to start. I have had periods of insomnia ever since and mostly only sleep 5hrs a night.

brenharrington1 profile image
brenharrington1 in reply to Sepsur

Hi, i am also the opposite, I struggle to get 4 hours sleep since discharge 11 weeks ago. I had 18 days in a coma for covid. Sleeping tablets have proved useless. Luara I have spoken to other people and this is normal with longer sleep patterns- your so lucky, I am jealous.

Sepsur are you feeling the lack of sleep is having a knock on effect or have you adapted to the new sleep pattern? I have adapted and now walk the dog at 4am and go to bed at 10pm but restless for the first few hours.

Sepsur profile image
Sepsur in reply to brenharrington1

I’m ok with it - although sometimes I’d love a full night’ssleep 😳

Luara82 profile image
Luara82 in reply to brenharrington1

I am tired constantly like 24/7, which isnt good when I've 2 boys (10&6) + youngest is awaiting Autism assessment. Doctors have done tests + say my iron levels are high which is another reason for increased fatigue + pain.

Beagledog profile image
Beagledog in reply to Luara82

If your insurance covers it or if you can afford it I swear by Acupuncture. If I can write to you in private somehow I'll go more into detail.

Luara82 profile image
Luara82

Yes. I was in a coma for over 5weeks, 5 yrs ago. At least 1 a week I would sleep for over that amount. Are you on an iron tablet?

Beagledog profile image
Beagledog in reply to Luara82

Hi Laura. I am new to healthunlocked. I got 5 replies initially incld. yours. Is it possible to respond to these 5 by typing just one message? Similar to Hotmail. Type one message, send to 5 different email addresses at once. If there is a place on healthunlocked that already states how to do that just point me to that site and save yourself the effort. Thank you.

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Wow, 5 weeks 5 years ago. And 14+ hours at least once a week. Very similar. But I have you beat.

I'm retired now. Ever since the coma. I wanted to travel but why spend all that money to fly to Europe and just sleep for 14+ hours? It may come down to that. It might be the best I can do. And it may be a nice change from being stuck around here (Seattle) and having the stupid virus confining me.

14+ hours = generally 12 hours plus 2 hours nap in late afternoon. Very consistent. I find it surprising it is so consistent. My CPAP machine measures avg. for past day, week, month, 6 months, or year period. Always 14 + hours. Just a bit over 14 hours.

I'm tired of this 14+ hour sleeping. Docs don't help me. I guess I'll have to figure it out myself. 40 years ago I walked out of U of Wash. School of Medicine here in Seattle after 3 full years. I'm am an AAD, an Almost a Doctor. I can read and talk medicine which has been very useful.

I think the ER docs kept me under too long. Very difficult to get a licensed practitioner to comment on my case. Much of it is a liability issue. But I just located someone who is an expert on comas and ER visits and will read my file and advise me for a fee. Don't know how much yet. I won't give out his name until I know if he is any good or not. Maybe he can refer me to someone else.

I don't want to have to type this message 5 times to send it to all 5 people what wrote me. And I hope it cannot get forwarded.

That's enough for now. Head is tiring.

BTW I am 66 but look way younger. The coma didn't age my appearance which is surprising. My biological age is about 27, verified by TeloYears.

Luara82 profile image
Luara82 in reply to Beagledog

Most nights I sleep around 9-10 hours and struggle to waken each morning. My psychologist said it was due to ICU (I had Necrotizing Fasciitis / flesh eating disease) and to have a couple of naps throughout the day (easier said than done with 2 children) but I noticed pain & fatigue seemed worse a few months ago. Doctors ran some tests and discovered I had Haemochromotosis (iron overload) which explains the increased pain & fatigue.

My dad had lots of health issues and some caused by negligence but solicitors & GP said no doctor would ever confirm that another doctor had made a mistake. Its very sad especially when its life & death.

Beagledog profile image
Beagledog in reply to Luara82

I don't know why it took so long to think of this but the Univ. of Washington (Seattle USA) would have access to any huge medical data bank if such a thing exists outside of the Net. Or there may be a way to get into any such huge medical data base via the Net.

I have an appt. with my endocrinologist tomorrow regarding my diabetes. I think some of the effects of the diabetes are reversing. I would like him to confirm. Then I want to know if such a reversal is common. I'm hoping for him to say it is uncommon or even unheard of. That would be cool.

Jessica1362 profile image
Jessica1362

I was on the vent for 12 days back in March. When I first woke up I stayed awake for days and barely slept the first few weeks afterwards. Now I wanna sleep like a teenager lol. I sleep like 10-15hrs a day and it’s nothing like how I was beforehand. My body is so stiff and sore.

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