First thank you to anyone reading this post. I have been reading all of the previous posts and I feel encouraged. My dad has been off sedatives for 5 days and has not woken up yet. He is getting continuous dialysis to help rid his body of the meds. Now they are seeing some swelling in his brain and I am devastated. He was breathing without the vent yesterday and the next step is a trach. Although I know it’s part of the process, palliative has me feeling hopeless. I recognize this is a definite marathon and not a race. I live 4 hours away and I really want him closer so that I can talk to him and encourage him to keep fighting. How can I live a half way normal life when I feel guilty for not being there?