Does anyone else struggle staying positive about ... - ICUsteps

ICUsteps

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Does anyone else struggle staying positive about a loved one "waking up" after induced coma when they talk to the doctors?

Angelia1234
Angelia1234

My husband is in the "waking up" phase after a 2 week induced coma (phenobarbitol) when seizing following cardiac sx and fighting a fungal infection. The drs and nurses are taking great care of him but they give off a hopeless vibe at times. "He's not responding fast enouugh" . they keep his room dark and quiet. I told them yesterday to use lights and tv when he has no visitors to help stimulate his brain. I love this community and the amazing stories, they keep me going when drs take my hope. (I know they dont mean to)

7 Replies
oldestnewest

Hi Angelia, I too have trouble staying positive, my girlfriend is in icu for close to 3 months now, I try very hard to get rid of negative thoughts in my mind but sometimes they get the best of me, sometimes she seems fine and sometimes worse. I understand very well what you are going through.

Angelia1234
Angelia1234 in reply to BigPun

I am 8 months later and there are better and worse moments. You just have to keep moving forward. In my case the drs were wrong about a lot so you never know!

BigPun
BigPun in reply to Angelia1234

I take it you mean your husband survived, that is good to hear, How long was he in ICU In total?

Angelia1234
Angelia1234 in reply to BigPun

Surgery 4-20-18. Induced coma until 5-3-18 and ICU until i think end of May but hospital stay was 4 months to the day. Hes been in a nursing home for 5 months and is coming home in a couple weeks. He survived so many obstacles! He's still improving and hes trying so hard. Walks with walker, talks pretty good some slur, memory has bumps.

BigPun
BigPun in reply to Angelia1234

Thanks for replying, I am so glad that your husband is well on his way to getting better. It gives me hope, my girlfriend has been in ICU for 2 months, she has bad infection in her blood and heart failure. I guess I should expect it to be a very long read.

Angelia1234
Angelia1234 in reply to BigPun

My husband had fungus in his heart/blood. Yes a long road. Ill pray for your girlfriend. Stay strong and research a lot.

BigPun
BigPun in reply to Angelia1234

Thank you will do.

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