I saw a lovely rheumatologist in my local hospital yesterday. He confirmed that I don’t have Lupus. He’s knowledgable with APS and is going to write to Prof De Cruz and he’ll send me a copy of the reply plus he’s going to phone me. He thinks Clopidogrel is the best medication so I’m staying on it. It seems the APS isn’t ‘strong’ for want of a better word. He said it’s like an overlay with my MS.
He was happy to refer me back to Prof De Cruz if I wanted him to but I feel satisfied after my appointment yesterday. Obviously if anything changes it would be different. He said, and I believe him, that the Prof’s waiting list is SO long which isn’t surprising.
So I can stop panicking plus he said there’s no need for my son to be checked out because it isn’t hereditary.
One thing I wasn’t aware of is that those who take Clopidogrel should take Lansoprazole daily to protect your stomach. They’re great and work within minutes.
So all in all, good news. What a shame neurologists can’t be as nice.
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Lansoprazole is advised with both aspirin and clopidogeel, the key here is to take either after food. If you can't, take the lansoprazole at least 1/2 hour before aspirin or Clopidogrel.
Good to hear your reasured and not so worried now, that helps.
Especially uplifting about your son- must be such weight lifted from your shoulders.
It’s so nice to have you here on this forum.
I dated a very nice guy in early uni years. A couple of years after he graduated he was diagnosed with MS. He took early medical retirement in his (late 40’s?)
He married a fantastic woman and they adopted a son who is now 13.
We have stayed in touch all these years.
He is having terrible TN. In the last two years he has had two gamma knife treatments- they last about a year then quit working. Three weeks ago he has a newer, more invasive surgery.
I’m sorry to hear about your friend. MS is something I wouldn’t wish on anybody. It’s a cruel, painful illness which mostly strikes in the prime of your life.
You say your son has symptoms also. The Rheumatologist said you should not test him for MS as that is not hereditary.
But you could ask to test him for APS (as that is what you also have indeed) as that may run i families. I do not know if he has got APS-symptoms though.
MS and APS are known to be rather often misdiagnosed as they are very alike.
Sorry but you write in your question above, that the Rheumatologist had answered; "it is no need to for your son to be checked out for it is not hereditary". He then thought of MS no doubt.
I then thought that your son had some symptoms and perhaps those symptoms could be related to APS. Of course it is no need to do so if he has no symptoms.
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aps postive at last.
got some interesting news
My wonderful Christmas news.
