Back on the 3rd of Feb I had a third stroke while I had an Inr of 4. They didn't believe I'd had a stroke and tried to send me home. I wasn't leaving until they agreed to an Mri, they booked me in for one on 6th Feb and as I was hitting my head against a brick wall I left. The Mri confirmed the stroke and after much persuasion they added 75mg of Asprin to the Warfarin, they actually thought I should just continue with what I'd been doing with no change and couldn't understand why that troubled me. They eventually decided to raise my Inr to 3.5-4.5 but didn't put anything in writing.
At my next fingerprick test I had an Inr OF 6.2, skipped 2 doses, tested a week later and had an Inr of 6.2. Skipped 2 further doses and tested a week later with an Inr of 6.2 again. Skipped 2 further doses tested a week later and you guessed it I had an Inr of 6.2. Following week after skipping 2 more doses my Inr dropped to 3.5. They thought that was great and decided to see me in a fortnight. I explained I'd just had a stroke at 4.0 so no chance I was sticking at 3.5 and leaving a fortnight between tests was too risky.
Later that day I received a phone call from the local Anticoagulant clinic stating they would no longer take responsibility for me so BYE.
I rang the hospital clinic next day, explained everything at length and said I needed someone to take over my testing, they took down all my info and promised to call me back. A week later I had a physio appointment at the same hospital so decided to visit the Anticoagulation clinic. They were not best pleased to see me although one nurse tried to help the sister running the clinic basically told me to leave as I was disrupting her clinic. They said they would write to me and even though there were only 2 people in the clinic they refused to test my Inr. I'd already purchased my own machine by this time and was happily self testing and managing but trying to still do things officially. The letter did arrive with an appointment for a week ahead, so by the time of the appointment I hadn't officially been tested for a month. I kept the appointment even though the letter made no sense to me, it was an appointment.
So on the day of the appointment they tried to change me to one of the new anticoagulants and seemed blissfully unaware that they are not approved for people with Aps or a high Inr. Once we got over that she did in fact track down the Dr I had seen on the stroke ward and asked him to pop in and confirm my raised Inr, which to be fair he did. I did get my Inr checked too which was the same as my own reading.
I expressed a wish to self test as I was doing it anyway and I'm rather good at it, far better than their computer program, She said she'd ask the consultant.
Today I went for another test and their reading and mine were identical, great, I had altered the dose as they had it too low and by adjusting the dose had my Inr stable and exactly where I wanted it. Proves I know what I'm doing right, lol was promptly informed I will not be allowed to self test and they'll see me in a fortnight. Hmmm I'm self testing twice a week and I'm stable, I'm self managing because I'm more accurate than the computer program, I've bought the machine and strips, not asked anyone to pay for any of it but no I can't self test. Asked who had declined my request and informed it was her manager the same unhelpful senior sister who threw me out of her clinic when I was being very polite asking for my Inr to be tested, so no excuse.
Thank heavens I have an appointment at st Thomas' on May 4th.