Do I have Hughes? Who do I ask to get tested?

[vince]

I had blinding headaches as a teen, these have returned with vengeance in the last three years. Also been diagnosed with Coeliac disease within this time. I am left with balance problems, dizzy spells, extreme tiredness, severe depression, panic attacks and a weird kind of shuddering, like what you see when a cuttlefish changes colour if that makes sense. Please help soo fed up. Me is a a woman I had a miscaridge too..

[jessielou]

Hi hon

Welcome and glad you found us! Sorry to hear of the health problems you've been having, as APsnotfab says, gp is first port of call, your symptoms do sound very familiar to lots of us on here!

Do ask, and let us know hon, feel free to ask away on here, we're a friendly bunch who will help if we can!

Take care gentle hugs love Sheena xxxx

[MaryF Administrator]

Hi there and welcome. You may have this, but your first port of call is the GP, there are also many medical papers available on the Hughes Syndrome Foundation website to read, and to print out for your GP. There is knowledge of this condition with the hospital at Leeds, so they should be happy to refer you if suspicious of your symptoms. Please do keep us posted and let us know. Mary F x

[Jade]

As the others have so rightly said you have to go to the GP. The symptoms sound like so many suffered by us but then other things could cause them too. Unfortunately you cannot make any progress without first seeing a GP for blood tests. You could go armed with information from the Hughes foundation website regarding the correct blood tests needed just in case your GP des not know about Hughes.

Good luck, let us know how you get on.