Is it true that with an APS diagnosis... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,378 members10,571 posts

Is it true that with an APS diagnosis you can not have either and Ablation or a Hysterectomy.....???

loppylou68 profile image
13 Replies

Just back from Gynecology Appointment where I was told that because of my APS and Warfarin use that I would not be able to have any such procedures.

Have any of you been told the same ?

Written by
loppylou68 profile image
loppylou68
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Manofmendip profile image
Manofmendip

I do not know about those specific procedures but I had open heart surgery when I was on Warfarin. I had to convert to Fragmin for the week before surgery and then restart Warfarin, after surgery, keeping the Fragmin going until my INR was back in range.

Dave

loppylou68 profile image
loppylou68 in reply to Manofmendip

Thanks for the response Dave

I have already asked for a second opinion, as I am having another procedure next Friday following the same protocol you described for your open heart surgery re Fragmin starting Monday.

For them this is not an issue and careful management.

So feeling confused as to why Ablation and or Hysterectomy due to APS and warfarin are different.......

Thank you for the info ;)

Manofmendip profile image
Manofmendip in reply to loppylou68

You are most welcome. Good luck.

adsmadison profile image
adsmadison

My first period after starting Xarelto was awful, 16 days long. I called my OBGYN and talked to him on the phone. He was quick to talk about the ablation procedure and scheduled me for a pre-op appt. He told me he would not do it in the outpatient part of Yale Hospital in case there was any complications. I was told I would leave soon after if everything went OK. I had it done before my next period started. Two days before the procedure I stopped Xarelto and took heparin. I had general anesthesia and woke up in recovery feeling just fine. I went home a couple of hours later. No period for the next couple of months and then the next 2 months it was very light for 1 day. For the past 8 months I am period free, YEAH!

loppylou68 profile image
loppylou68 in reply to adsmadison

Thanks for your response I have asked for a second opinion its about quality of life for now on

Holley profile image
Holley

That's incorrect. Because of my APS I have to take Coumadin. My cycles were horrible. They lasted 10 days and I stayed close to home. I had an ablation done several years ago. Best thing I ever did! My gynecologist worked with my hematologist to manage my anti coagulation. The ablation is done either with thermal balloon to scald out the endometrial layer or it's scraped out.

loppylou68 profile image
loppylou68 in reply to Holley

Thanks for your reply and thanks to this forum and all your experiences I know I have to move forward and challenge this decision

Holley profile image
Holley

Forgot to mention mine was done as an outpatient.

clairann2000 profile image
clairann2000

My doc says you just have to make arrangements to temporarily stop (night before the surgery) and begin again immediately after the procedure...2nd opinion sounds like a good idea.

loppylou68 profile image
loppylou68 in reply to clairann2000

Thanks for your response - Im on it ;)

AngelinaN profile image
AngelinaN

I was diagnosed with APS in 2001 - had total of 7 miscarriages and eventually had radical hysterectomy in 2006 - after years of problems. Mind you nobody new what aps was so I went untreated until this year and took 3 dvt's to get looked after - one of them while I was on warfarin

loppylou68 profile image
loppylou68

Thanks for responding appreciate all this great feedback ;)

zzaaassskk profile image
zzaaassskk

How long does an ablation last? do the periods come back?

Not what you're looking for?

You may also like...

Azathioprine dose

First a little background: I have been on 200mg of Azathioprine, for a number of years. All that...

Might be diagnosed with Antiphospholipid Syndrome (APS)

Hi I previously in January 2023 was diagnosed with PE, the past year has been difficult and long...

A new discovery for potential treatment!

Light at the end of the blood thinner treatment tunnel? Just read this today:...

Has anyone taken Perdnisone or Prednisolone with Warfarin ?

Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ?...

Coaguchex Xs test strips

Just wondering if anyone stores their test strips in the fridge, ? I never have but new pharmacy...