Hi, I was recently diagnosed with this condition but have not had (thank God) any clots, miscarriages etc. I was diagnosed after having very strange symptoms following a very stressful divorce a couple of years ago which lasted 2-3 years. After frequent visits to the consultant they finally came up with this diagnosis. What I would like to know is if the symptoms I have been having are part of this condition or have they have just detected this in my blood by chance due to the frequent unusual thorough blood tests they took from me.
It started with what I can only describe as trickles in my forehead and scalp on one side only. (I was convinced it was a brain tumor) It feels like something is crawling on my scalp/forehead a bit like when water has dripped into your head from above. (MRI scan is clear) On top of that I had pulsating tingles in my foot which travelled up my leg to my knee. I also on occasion wake trembling on the inside (not externally), as if my whole body is vibrating. Fatigue (not just your standard tiredness), hair loss (round hairline and getting worse), palpitations, fuggy thinking (B12 helps with that a lot) and just generally feeling not me!
I have tried lots of self help medications, ie, cod liver oil, magnesium (these were suggested to me by my neurologist) and have noticed a slight improvement. But wondered if anyone out there could advise/comment if they have anything similar.
Im not on any medication, doc felt it was unnecessary, but now after reading about it and what it can cause, stroke, heart attack, clot etc, Im very scared and restricting my exercise regime.
Other than that I would consider myself a fit and healthy 40 something woman. Had no problems apart from IBS prior to my stressful episode.