I was diagnosed with APS in 2007 following 3 DVTs and a bilateral Pulmonary Emobolism. My long term medication consists of Warfarin and 40mg Simvastatin daily. My INR range is between 3-4 but very rarely meets this reading despite weekly blood tests. These tests are made up of venous samples and then sent to the lab as opposed to using Coagucheck XS machines as the latter gave me highly inaccurate readings.
I have been under various Rheumatologists, General Physicians and Haematologists and am constantly replacing these well-meaning people because of their total lack of understanding about APS and its various manifestations. I have a great relationship with my current Haematologist who manages my INR and I see him every 4 months or so. However, nobody seems to be able to manage my general and deteriorating well being because of total lack of general knowledge in this field.
Due to the onset of recent neurological issues, including cluster migraines, loss of memory and general slowness of thought process, I want to either be referred to a Neurologist in the Northwest or alternatively be referred to St. Thomas's Hospital. Relating to the latter, please could someone give me contact details or indded if anyone has any comments re the above, please let me know.
Very many thanks. Paul