It is my son that has Hughes Syndrome, I do this on his behalf. He has been diagnosed as having peripheral edema, could this be due to his blood levels being wrong? Also he's very tired.. He has been waiting very patiently to be refered to a proper specialist in this field. He actualy had heart attacks due to DVT 5 years ago, & is on warferin 80 m gm atanvastatin etc etc.
My son (44) coping with H.S. - Hughes Syndrome A...
My son (44) coping with H.S.
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Medsil
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MaryFAdministrator
Hello, yes I have heard of this in other people, sooner or later somebody with personal experience of this will come on here and give you further detail. I also know it can happen when people have Lupus combined with Hughes, also. I know this is only a partial response, but more will come I am sure. Best wishes to you and your son. Mary F x
I am very interested in your subject, in particular the pheriphal edema, what is this as I have the same, do you have a full explanation???
Many thanks
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