My husband has APL, had a few PEs before diagnosis and now on warfarin. He also has Raynauds and a pacemaker ( fitted 10 years ago for heart block despite being a very fit and athletic person) . In Aug this year he had pneumonia .
He has deteriorated quite quickly over the last few months from a fit and active person to being virtually housebound due to severe and constant pain oh his left side, sometimes radiating to his back. His stomach makes constant rumbling noises! He finds it difficult to determine whether the pain is coming from his lung or his stomach but it makes him nauseous. He has lost a stone in weight and is very fatigued . He has had CT scans but they cannot find a cause. Has anyone else had similar experience and if so, what treatment was effective?