Thanks...

[travelnut]

I just wanted to say a big thank you to all of you who have already completed the Exercise and APS survey. We have had a great response and some very positive feedback from patients and the medical profession.

The survey is still open and will remain open for a few weeks so if anyone hasn't had a chance to complete the survey as yet there is still time and every contribution matters.

The link to the survey is - survey.kent.ac.uk/exercisea...

Karen

[MaryF Administrator]

Hi there, I don't think I have done this, will look at this over the next couple of days and thanks. MaryF x

[travelnut]

Many thanks Mary.

[CanaryDiamond10]

Is this survey open to patients in countries other than England, such as Americans, or would that taint the information that the survey is trying to acquire and analyze? What is the ultimate purpose of this particular survey? Could it provide a comparison with patients from other countries treated in different ways? Just curious. (I know, it killed that cat!)

[travelnut]

Thanks for your interest CanaryDiamond10. A few quick answers to your questions.

The aim of the survey is to look at what physical activity and exercise people with APS participate in, what information they have received about participation in exercise and how they perceive having APS has affected their participation in physical activity and exercise.

The survey is international so open to everyone and anyone who has APS and can read English. The survey asks which country you are from so when we analyse the results we can take that into account and potentially look at some differences between countries. The survey is not looking at treatments and clinical outcomes so it will not be evaluating which treatments are better than others or anything along these lines.

We are hoping that the survey will help to identify some of the issues and needs that people with APS have in participating in physical activity and exercise activities and that this will lead to further research to help facilitate participation and ultimately benefit people with APS.

I hope that is helpful. If you would like more information just drop me a message with your queries.

Have a good Sunday evening.

Karen

[Suzypawz]

Ok just got around to doing it.....blimy I thought I was going to be stuck on the comp' all day with that!!!!

Hope it helps x

[travelnut in reply to Suzypawz]

Thanks Suzypawz - your input is appreciated and every contribution helps.