Sticky Blood-Hughes Syndrome Support
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Hello Kim, I am so glad you have had good news at last after your misscarriages and things are looking up for you. I too would like to share my experience with you.

I too got pregnant and had a lovely little girl who was 6 weeks premature, she was fine and a good weight of 6lbs. I was quite ill carrying her, low blood count, anemia etc. but got sorted. I then decided to try for another, but miscarried at 10 weeks, the same again and after miscarrying four times I got referred to Liverpool Womens Hospital, they found out I had APS and had it when I was carrying my daughter, unknown to me or them as I had all the symptoms for APS then?? I am glad to say that I got pregnant and had all the best treatment from Liverpool, although I had to travel for 2 hours to get there, nothing was too much trouble. They monitored my pregnancy and I got weekly scans to reassure me that all was well, the pregnancy was fine, although I did bleed at 10 weeks again they saw me straight away and I had a scan to see if the baby was fine, which he was. They started me on heparin injection on that day just to be on the safe side. After taking the injection for about 8 weeks I got terrible rash over my thighs, knees and belly where I was injecting myself. I phoned them up, told me to go in straight away and I had to stop the injection as I was allergic to heparin, which I am glad I had taken as the pregnancy continued fine thereafter and my baby boy was born 6 weeks premature (which incidentally was no suprise this time round, as apparently most women don't go full term when they have APS) and he weighed in at 4lb 8oz healthy, slightly jaundiced but otherwise fine. He is now 13 yrs old and is 5.7" tall, so much for being a small baby he has definately made up for time.

So as you can see there is light at the end of the tunnel, my two beautiful kids are living proof. It was a struggle,tears and disappointments along the way, but the end results are worth it. I hope you get pregnant soon and everything will run smoothly for you and that you will get a beautiful bouncing baby at the end of it. Keep us informed :)

Regards, Julieanne.

4 Replies

An uplifting and informative post and again about Liverpool Women's Hospital.

This is great news. Love Mary F x


Hi Julieanne,

Thank you for sharing your experiences with us, i am glad you were looked after so well at the Liverpool women's, they really are great there, and after one consultation with them, i feel confident that i am going to be looked after properly, it's such a relief, i will have to travel about an hour and a half to get there, but it is worth it for the care, i didn't realise most people don't go full term- thank you for letting me know, i can now ask about this next time i see them.

Thank you so much for sharing your experience with me, it gives me so much hope and reassurance, which is exactly what i have needed, as i have felt so lost recently,

Thank you again, I will keep everyone updated,

Many Thanks



Hi julieanne

Is so great to hear good things about hospitals around the country. It's reassuring to know there is expertise in places other than London. Another one to recommend in future.

Hope you feeling ok today.

Take care gentle hugs love Sheena xxxxx :-) :-) :-)


Thank you all for your comments. I am glad to share my experience with all concerned, if it brings hope and reassurence to all who are at the moment going through a difficult time then I am so happy to help. I hope that everything goes well Kim, keep you chin up, I am sure you are will get all the help you need. Also Kim, I was told that not only will the pregnancy won't go to full term as the placenta does not function properly after 7/8months, but your baby will not be big ... 8 or 9 pounds either, it will be between 5-7 lbs. This is what was said to me, but of course this is over 14 yrs ago so things could be quite different by now, but its worth asking so you know what to expect. Good luck. Regards, Julieanne.


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