Trying to get a diagnosis: I have an... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Trying to get a diagnosis

SusieMac profile image
3 Replies

I have an appointment to see my consultant for follow-up tests and hopefully a diagnosis of Hughes / APS on 1st September. I have 6 weeks to lose some more weight in my attempt to get out of the 'obese' BMI category!!

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SusieMac profile image
SusieMac
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3 Replies
MaryF profile image
MaryFAdministrator

Hi there, well done on the letter and getting some sort of reply. Try to keep cool with it, all there is a good paper take along off our site re 'seronegative hughes' that might also help, and other stuff on there, well done with the weight loss, it does help with any disease, and another 6 weeks will reap its rewards! I believe if you contact Kate Hindle of the HSF, she may know who is your nearest contact for expertise, I felt it might be Leeds, with somebody having transferred not that long ago form Edinburgh? I may stand corrected on this. Do keep us posted and best of luck. Mary F x

GinaD profile image
GinaD

There have been many friends who I have seen on that rocky road to weight loss. So far I have noted that those who are most likely to achieve success are those who 1' use the expensive Nutra System packaged meals or, 2', go on what one friend of mine calls the " no white and no sugary drinks diet. ". You literally don't eat anything that is, or often can be, white. No bread, no potatoes, no sugar, no rice, etc. It seems to work. Good luck.

jessielou profile image
jessielou

Hi susie

Glad to hear you got appointment in September, hopefully get answers and treatment sorted.

Good luck with the weight loss, sounds like you doing great and very determined.

Hope you feeling ok today.

Take care gentle hugs love Sheena xxxxx :-) :-) :-)

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