Trying to get a diagnosis: I have an... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,356 members10,544 posts

Trying to get a diagnosis

SusieMac profile image
3 Replies

I have an appointment to see my consultant for follow-up tests and hopefully a diagnosis of Hughes / APS on 1st September. I have 6 weeks to lose some more weight in my attempt to get out of the 'obese' BMI category!!

Written by
SusieMac profile image
SusieMac
To view profiles and participate in discussions please or .
3 Replies
MaryF profile image
MaryFAdministrator

Hi there, well done on the letter and getting some sort of reply. Try to keep cool with it, all there is a good paper take along off our site re 'seronegative hughes' that might also help, and other stuff on there, well done with the weight loss, it does help with any disease, and another 6 weeks will reap its rewards! I believe if you contact Kate Hindle of the HSF, she may know who is your nearest contact for expertise, I felt it might be Leeds, with somebody having transferred not that long ago form Edinburgh? I may stand corrected on this. Do keep us posted and best of luck. Mary F x

GinaD profile image
GinaD

There have been many friends who I have seen on that rocky road to weight loss. So far I have noted that those who are most likely to achieve success are those who 1' use the expensive Nutra System packaged meals or, 2', go on what one friend of mine calls the " no white and no sugary drinks diet. ". You literally don't eat anything that is, or often can be, white. No bread, no potatoes, no sugar, no rice, etc. It seems to work. Good luck.

jessielou profile image
jessielou

Hi susie

Glad to hear you got appointment in September, hopefully get answers and treatment sorted.

Good luck with the weight loss, sounds like you doing great and very determined.

Hope you feeling ok today.

Take care gentle hugs love Sheena xxxxx :-) :-) :-)

You may also like...

Trying to get a diagnosis

several small indicators I have a clogging issue, but I went to have the APS tests done which came...

Trying to get more information

I've had treatment and gone on to have 2 children, but after having tests for problems lately the...

New to APS - Trying to Get Pregnant

I have a somewhat unique story as to how my diagnosis came to be... I had a DVT in 2015 and went...

Desperately trying to get back to within therapeutic level

I have been struggling to get back to my therapeutic level of 3-4 for the past 3 months, I self...

Back in hospital trying to get proper testing...

on board. Having the migraine freaked me out. I used to have migraines 3 to 4 times a week before I...