THank you to all that answered my question, guess I should have put on there as well....are all of you on blood thinners for life as well?

[blood]

[Dani71]

Yes, but only aspirin.300mg. & clexane for flights etc...

[jessielou]

Hi hon

Welcome and glad you found us.

I am 48, was dx 3 years ago but have had Aps for a long time. I'm on lifelong warfarin!

Take care gentle hugs love Sheena xxxx

[sharonap]

Yes Iam on lifelong warfarin.

sharon x

[MaryF Administrator]

Yes aspirin twice a day, and recently plaquenil, but severe allergy to that one. Mary F x

[marycath in reply to MaryF]

Hi, at last I am on blood thinners, since May last year. As many know that I have been on the Hughes site since 2007, as I'd had 3 severe cardiovascular lifechanging events, and many other probs. Being in north Queensland or further south nothing was being done till I researched, finding APS with positive tests, but took till start of 2010 finding a eye doctor here conversant with APS, who treated my eye, (was an eye stroke) and gave me referral I needed to see doctor at London Bridge Hospital mid 2010, with positive APS, and details of rheumatologist in Sydney. Plavix ( clopidogrel) was suggested by London as I have stomach ulcers, but had to push eye doc mid last year to put me on it. Having a colonoscopy/gastroscopy soon, so I was pleased that local hospital has arranged for me to have clexane at that time. Having had flight probs a few times, would prefer to have clexane for flights next.

[Angelpaws]

Hi! Yes, lifelong Clexane injections as prescribed by haemotologist. Off to St. Thomas' in August, so they may change that? Adverse reaction to Warfarin.

[Sarita in reply to Angelpaws]

Hi there, I am on Sintrom, maybe spelled Sintrome in the UK, I also cant take warfarin

[jean48]

Yes coumadin for life -

Jean

[Renae]

I was diagnosed 17 years ago, after a heart attack while pregnant. I also have Lac, anticardiolipin antibodies, protein s&c deficiencies and lupus sle. I have been on warfarin/ coumadin since 1995 and will be on it for life. Right now I take 20mg daily...

[Sarita]

Me too Coumadin (Sintrom) for life xx

[tim47]

Warfarin since late 70s and for life (bar a spell on heparin next week for an in patient procedure) target INR 3.8 to 4.0, usually achieved by for/five mg alternating but checked every other day.

[Manofmendip]

Warfarin since 2002, target INR 3.8 - 4.2 but converted from Warfarin to Fragmin 15,000IU for the last 3 months to try to stop 'funny turns', which has been successful in dramatically reducing them.

Best wishes.

Dave

[kelgem]

yes wafarin7mg / day target INR 4 and aspirin for life, clexane when in patient

Kris

[tassie]

Aspirin, plaquenil and warfarin for life along with a host of other things

[GinaD]

Put on warfarin in 1986 for a series of DVTs, which were then attributed to a high platelet count. The platelets dropped in the early 1990s, I was taken off warfarin and immediately began to have migraines, which became more and more intense until I had a stroke in 2000. Now I'm on warfarin for life and they'll have to pry my script bottle from my cold, dead hands!

[deerwendy]

Warfarin 2.5 mg daily for life.

[Lesley_D]

Hi yes Warfarin for me normally around 7 - 8mg INR range 3 - 4 but upper end of - if INR drops below 3 then 15,000 of fragmin as well - all for life

[CanaryDiamond10]

Currently I manage with : One 325 mg apirin, 1 mg clonozapam (generic for Klonopin) 2x day to manage cerebral stroke damage (severe stuttering, severe tremor in right hand./arm, balance, bouts of confusion) 100 mic. Fentanyl 72 hour patch (duralgesic), Vicodin and medical marijuana as necessary for pain.Those are for life. CQ10, 300 mg. for muscle/bone pain (current trial), current trial of 25 mg Metroprolol (generic for Toprol XL) just began waking up with diastolic pressure in 3 digits. This upsets me because I am aware blood pressure can be mind controlled. I have succeeded before in bringing a high blood pressure down to normal, thereby eliminating a medication and was able to sustain it for two years through meditation. I'm having no success lately. I must be having some troubling dreams as I wake up and it is 168/126 or there abouts. I usually do my exercise regimen first thing in the morning before I get tired and so that I can move easier throughout the day. That generally brings my blood pressure to the high/normal range. But not so this time. Am working on bringing it into line and eliminating a medication.