Has anyone found that their Symptom o... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,397 members10,602 posts

Has anyone found that their Symptom of APS were improved by taking Prednisalone? Thank you for any input on this.

Everdean profile image
11 Replies
Written by
Everdean profile image
Everdean
To view profiles and participate in discussions please or .
11 Replies
jessielou profile image
jessielou

Hi hon,

Yes I do, I have steroids 40/60mg from time to time for chest infections, asthma symptoms and skin infections, when on them I find joint pains, muscle pains etc imrpove and I have more energy, i am currently on very low dose 5mg to try keep skin inflammation under control, sadly not help much with everything else.

Hope this helps.

Take care gentle hugs love Sheena xxxx :-) :-) :-)

Everdean profile image
Everdean

THANK YOU So much for this. I KNEW the pred. was covering something. I am having probs. convincing the Dr I have Hugh's Syndrome.

I found even 5mg helped a lot, but now I'm off that I have ALL the symptoms.

Love nd hugs to you too. X

louise78 profile image
louise78

Hello, I have prednisolne as part of my aps treatment (as well as several other meds). Initially it was fantastic, I felt great and all of my symptoms were surpressed. But then after about 6 months they all crept back as well as the side effects of the prednisolne! I still take it every day and I'm sure it does help to some extent but I don't feel fantastic anymore! I have a cocktail of meds so I couldn't say how much it still helps because I can't be certains which ones are doing their job best! Hope this helps

louise78 profile image
louise78

Hello, I have prednisolne as part of my aps treatment (as well as several other meds). Initially it was fantastic, I felt great and all of my symptoms were surpressed. But then after about 6 months they all crept back as well as the side effects of the prednisolne! I still take it every day and I'm sure it does help to some extent but I don't feel fantastic anymore! I have a cocktail of meds so I couldn't say how much it still helps because I can't be certains which ones are doing their job best! Hope this helps

Everdean profile image
Everdean

Thank you Louise.

It does help me to hear this from you. I know I felt better on Pred. But wondered if was my imagination.

Take Care.

I take Prednisone to deal with low platlets (ITP).

Everdean profile image
Everdean

That is interesting MarvinS. Do you think it helps relieve symptoms of APS?

Jade profile image
Jade

My only contribution is that years before diagnosis but in the thick of symptoms I was given them for asthma. Wow what a brilliant week I had. Every symptom I had went and I was speeding around and felt sure I actually run.

A GP friend thought it interesting that that happened but did not give it much thought.

I know though.

Everdean profile image
Everdean in reply to Jade

Thank you Jade.

It's interesting isn't it, why this hasn't been looked into more?

I understand that Steroids are in general, bad for us, but why do they help so much I wonder?

Everdean profile image
Everdean

Thank you for this. It makes sense.

Morgan profile image
Morgan

Hi I took Prednisolone to boost my platelets (ITP) prior to an operation but it had the opposite effect and sent them to zero so it doesn't work for everyone. Recently been diagnosed with APS, waiting for an infusion - anyone had this?

Not what you're looking for?

You may also like...