Just thought I would keep you updated with how well my website is getting viewed by people...& it is the Hughes section that is getting viewed the most!....which I feel is fantastic news
To date there has been 1,429 views since I started it 2010-2011. The last few months I have been doing all I can to put the info' out there......
In the last couple of months the chart has rose as shown by the image!! .......
At last the word is getting out there!!!
All 3 shopping centres we have in Burton are now advertising my posters for us, many people have taken my posters to put up where they can, doctors surgeries, chemists & the hospital in my area now have the Hughes leaflets/booklets displayed.
All I want is for people not to feel that they are imaging their symptoms & to ignore them....but to question the docs'.....could it be?......I dont want to make people paranoid, but I also dont want them to ignore possible symptoms of APS & then to pay the consequences later!!
In this day & age there shouldn't be so much ignorance from the medical profession, I don't want anyone else to hear: 'it's modern living', 'you're depressed' or 'it's all in the mind!'.....as I did & I know a lot of you did too!
I will always try my best to raise awarness & I think of all of you as my extended family hugs to you all, keep smiling xx
Written by
Suzypawz
To view profiles and participate in discussions please or .
Great - keep going, would like to see a poster AND are you putting the standard Hughes leaflets out or new ones? As if so I will do the same as my paediatrician and also doctor getting interested! MF x I am also about to do some writing for a medical organization about my experience to date.. so this will come out with BELLS on etc M x
Suzy - you are doing such a fantastic job , and to keep up this pace with the way you feel sometimes is just amazing. you are a true insperation . thank you for all you are doing ------------------- jet
~I have been thinking today, unusual for me, but if I had some posters and some leaflets I could take them to the hair dressers in my town, even if they couldn't put the poster up they would be aware of the syndrome. they may hear of someone who has a problem linked to Hughes and maybe point them in the right direction.
Could we have a hairdressers week where as many people as possible take leaflets to local Hair dressers that would help I think
Good idea....why not try everywhere....I know Kate mentioned not having many of those leaflets left until when they have some more printed.....but you are welcome to my posters, not sure if this will work...but here's a link to the poster x......
Funnily enough I was at the hairdressers Saturday and my hairdresser had never heard of Antiphospholipid syndrome.I'm looking forward to the day when everyone has heard of this condition and can relate to it.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
newbie
I wanna know about your APS/hughessyndrome. how you found out you had it, and what your symptomes are.
I have just been diagnosed with Antiphosholipid syndrome - can anyone explain the strange head feelings.
I lost both my legs to Hughes Syndrome.
Thank God for this website!
