Up date immunity

[daisyd]

Morning, just to give you an update on my immunity, I have heard from my Gp who has told me that I am going to be seen at a specialist Hospital for immune disorders

I have also been booked in for a covid booster 4th and I am only 64

I would have been more worried if I hadn’t started on vit D 3 as it has seemed to have improved my muscles and muscle spasms and I haven’t had a cough since, I also don’t need any help to get off the floor after playing with my grandson

Thank you Mary for giving information on Vit d3

Because I have Hughes Syndrome plus other conditions that have been caused by it, I have just accepted things mainly as I am fed up with local hospitals Gp etc

Although I must say I have had excellent care fromSt Thomas’s

Anyway, if anyone has symptoms don’t assume it’s caused by Hughes syndrome, keep fighting

[MaryF Administrator]

Hiya, well done with your progress, I too felt better on B12 and D3, plus Thyroid treatment once I got to the bottom of things. It is not unusual with Hughes/APS and Lupus etc to have deficiencies, which make us feel worse, my iron is also better than it was. MaryF

[lupus-support1 Administrator]

If you are having certain “chemo” drugs for your immunological treatment eg Methotrexate, Rituximab etc they will wipe out your antibodies.

There’s now a drug by AstraZenica called Eversheld that will give you the antibodies to fight covid.

I would discuss the possibility with your doctor should you be prescribed drugs that compromise your immune system.

astrazeneca.com/media-centr...

It has FDA approval and the NHS.

Be well!

Ros

[Barnclown]

Thanks daisyd! You’ve been on my mind ever since your last post re you immunoglobulins levels. Glad to have your good news. Hope you’ll continue to keep us posted!

My University Hospital specialist Immunology dept looks after immune disorders & has been giving me great care for years now due to my below normal reference range Immunoglobulins G, A, M (panhypogammaglobulinaemia, a Primary Immunodeficiency Disease aka Antibody Deficiency Disease). thanks to them, I have been doing much better generally health-wise. So, my feeling is your specialist team will too

Take care & good luck 🍀💞Coco

[daisyd]

Thank you, I must admit I keep looking it up on the internet which isn’t a good idea I know