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GHIC Patient's Day - 9th December - online

MaryF profile image
MaryFAdministrator
13 Replies

We are delighted to announce that on Thursday 9th December from 10.15 a.m. – 16.00 p.m, the Graham Hughes International Charity will be hosting an International ‘Online’ Patients’ Meeting, designed for Hughes Syndrome patients and including a fantastic line-up of talks from experts in the field.

From Hughes Syndrome causes to diagnosis and treatment, lifestyle management and more, this patient day will cover a wide variety of topics with valuable information that will benefit those in the Hughes Syndrome community seeking to understand more about the condition. You can view the full programme for the day here: shop.ghicworld.org/wp-conte...

Register for your free ticket here: shop.ghicworld.org/.../an-i...

Once you’ve registered for the event we will be in contact nearer the time with more information, alongside the link to join on the day.

This patient event is free to attend, however if you would like to make a donation to the Graham Hughes International Charity it would be extremely appreciated. We receive no government funding, so your donation will enable us to continue to provide essential information and support to people with Hughes Syndrome across the UK.

For any questions about this event, please email hello@ghicworld.org.

We look forward to having you join us on 9th December for what is set to be a fantastic event!

MaryF

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MaryF profile image
MaryF
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13 Replies
HollyHeski profile image
HollyHeskiAdministrator

Sounds wonderful - sadly I am working so unable to attend.I don't seem to be able to open the link for the full itinerary?

MaryF profile image
MaryFAdministrator in reply to HollyHeski

Thanks for tip of about link will get that sorted, and you will be able to watch afterwards, will make sure you know when you can. MaryF

MaryF profile image
MaryFAdministrator in reply to HollyHeski

Try now, have done a new link. MaryF

HollyHeski profile image
HollyHeskiAdministrator in reply to MaryF

All good now- thank you

Piscesdreamer profile image
Piscesdreamer

Awesome! Thank you!

lupus-support1 profile image
lupus-support1Administrator

Reposted to LUpus Patients Understanding & Support (LUPUS)

healthunlocked.com/lupus-su...

MaryF profile image
MaryFAdministrator

Great, thank you. MaryF

Vailea profile image
Vailea

Thankyou for this information Mary x

rach1081985 profile image
rach1081985

Wow this is fab....I've just registered always wanted attend one of these

MaryF profile image
MaryFAdministrator in reply to rach1081985

Good, see you there. MaryF

BeachHaven123 profile image
BeachHaven123

Hi Mary--am having trouble registering and it is 730 at night there can u helpI really want to do this ty Susan

MaryF profile image
MaryFAdministrator in reply to BeachHaven123

Have another go tomorrow, and if that does not work I will endeavour to help. MaryF

THANK YOU Mary! I'm signed up and I'm VERY excited!!

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