I GOT MY COVID VACCINE 6 months after... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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I GOT MY COVID VACCINE 6 months after a mild version of COVID-19 in July.

nurse_ninja profile image
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Hi there. I have APS with Asthma, anemia, Raynards, & Carpal Tunnel. I am a Psychatric Nurse in patient psych hospital in Florida, USA. My Rheumatologist would not sign off on the COVID VACCINE, stating " there isn't enough research on auto immune people to say it is safe. She referred me to my PCP. Who said, "As long as you are not allergic to the ingredients, then it should be safe to have." How does one know if they are allergic without being exposed to it? I want to travel again and go on cruises in the future. I think we will be required to show immunization to fly, cruise, etc. Since, I have had COVID in July and did okay. It was a very mild case. I thought I'd be okay because I have the antibodies. I also take Plaquenil. So, last Wednesday, I had the COVID vaccination. I had 2 really bad days. Fever, chills headache, vomiting. It was actually worse than the actual COVID, due to the GI involvement. The positive side, it did not last for 3 weeks; rather 2 days. I understand that as you show symptoms of COVID, after the vaccine, you are not infectious. I had Modera Vaccine. I am planning on the 2nd dose in 3 weeks. I just want to get on with living my life. I want to travel without restriction. Tomorrow is not promised to anyone. Best of luck. Serena

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MaryF profile image
MaryFAdministrator

Thanks for taking the trouble to give us feedback on your experience, so many of us have to weigh things up with the vaccines, which seem to be suiting many, thankfully. MaryF

veganworld profile image
veganworld

Hi there

Thank you for sharing. My mother has many auto immune issues the worst being Rheumatoid. She is 83 and was very worried about the vaccine because she has had severe allergic reactions to codeine. No doctors could give her an answer, one said do not have it but she really wanted it. I found this info for her on the internet.

anaphylaxis.org.uk/covid-19...

Sorry you may have to copy and paste that into the search box you are using as link didn't work.

After reading through this it seemed the best one for her was the Astra Zeneca as it has less synthetic ingredients. Full list are outlined for each vaccine. She raised this with her GP and he still said not to have it. On the day of her booking she went with my father and they asked her what she was allergic to as they do everyone and from what she has told me my father had the Pfizer vaccine as he had no allergies as did most people there but after discussing with my mum she had to have the Astra Zeneca. She decided there was as much risk by not having it and they assured her she would be okay.

I am happy to report they were both absolutely fine and neither had any side effects. I can't give the vaccine staff who were administering the vaccine enough praise as they knew exactly what to ask and what she should have and they put her mind at rest and seemed more knowledgable that her GP or Rheumatologist. I am very glad you were also okay after a couple of days.

I thought others on here would find the different vaccine contents interesting to read about if you can use the link.

Stay safe all

Kax xx

GinaD profile image
GinaD

I am allergic to some stabilizer ingredients found in a lot of vaccines, shots and some pills; PEGs. My reaction to them is anaphylaxis. Both Moderna and Phizer have PEGs, so, on advice of my doc, I will wait for the Johnson and Johnson which is not supposed to have PEGs. Recently I had the flu shot ( as I do every year,) and the 2dose shingles vaccination. I had no reaction other than a sore arm and a bit more tired than usual.

my understanding is that those rare but serious reactions to the new covid shots are due to PEG allergies, which is often IDed by previous reactions. (Here I thank Kelly from Texas for pointing me in the right direction.) If you have received shots before, or tolerate the laxative dulcolax well, then you probably do NOT have a PEG allergy. For more guidance, consider consulting with your pharmacist about ingredients in covid vaccine and in meds you have had and tolerated well.

olleberj profile image
olleberj

Thank you for sharing your experience. It alleviates some of my anxiety about whether I should get the vaccine when it is offered to me.

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