So very sorry haven't updated - Hughes Syndrome A...

Hughes Syndrome APS Forum

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So very sorry haven't updated

dar58 profile image
15 Replies

My daughter did come but is leaving today. We had a wonderful visit even though I had appointments constantly. I was transfused on Friday with 12 units of platelets and 1 of hemoglobin. This morning they checked my blood and I was rushed to ER with critically low blood counts.They transfused as fast as they could. My body is no longer producing platelets at all. This was so fast to get to this point. The pain is unbelievable. I go to Moffett in a few hours. We do know the end is near. I am not ready but the pain is horrible ☹️.

I apologise for not getting back sooner but with everything going on I really didn't have time or energy to do so. Please continue to pray for my family, 🙏🙏🙏💖💖💖 thank you.

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dar58 profile image
dar58
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15 Replies
HollyHeski profile image
HollyHeskiAdministrator

Please please don't apologise, you are in every one here's thoughts and prayers.

I wish we could give you more than useless words.

I'm so glad you had time with your daughter, family is so important, you have reminded us all that time is precious.

I hope they can get your pain under control, life is so unfair.

Sending you a big hug xxxx

Kmbh profile image
Kmbh

Sending you all the gentle hugs and words you can manage. Hope your pain is managed soon and you get some quality rest.

In our prayers

MaryF profile image
MaryFAdministrator

Thank you so much for keeping in touch, best wishes to you and your lovely family, we are all rooting for you, please prioritise getting your pain under control, above everything else. Huge positive vibes are being beamed out to you. Mary F xxx

lupus-support1 profile image
lupus-support1Administrator

Apologies unnecessary. You are in my thoughts and prayers!

Ros

judes profile image
judes

Sending love and hugs and there really is no need to apologise

J

Ageingfemale profile image
Ageingfemale

So lovely of you to get in touch at this time. We pray your pain eases and you are comfortable. You have been and are amazing! Don’t ever forget that. God bless you and your family. xx

KellyInTexas profile image
KellyInTexasAdministrator

Please do not apologize-

What we would wish from you is this:

For you to feel our love and strength with you at this time for you and your family.

We will be here for you and your family for as long as you need- or they need.

Your daughter is welcome to visit here as your advocate as you become too tired. She can have new friends here with us.

We will take her in our arms , along with the rest of your family during this time.

Love , and time to rest Dar!

Still holding your hand in Texas. Not letting go while you need it. Will hold your daughters also.

With a prayerful heart full of joy for the love we have for others,

Kelly

suntap profile image
suntap

I am so very, very sorry for you and your family. You are in our prayers. xx

GinaD profile image
GinaD

I pray for you.

wgsuzy profile image
wgsuzy

May all the love and light from everyone here surround you and hold you now. Your kindness and Beautiful giving spirit will ease you on to your next journey when it is time. Know that you are and will be remembered with love.

Sending soothing light and love to you to be comfortable with no more pain. You are loved and have given love, be at Peace. Peace and love to you, Suzy

rach1081985 profile image
rach1081985

No need 4 apologies beautiful lady.. You are in my prayers... Sending u and your family big hugs xxxx

mariamoo1 profile image
mariamoo1

In between all of everything, i do hope you managed to have quality time with your daughter. Together. You are in my prayers xx

Nanny23 profile image
Nanny23

Praying for you and your family. So very sorry you have such pain. Hopefully your doctors can address that and give you some peace. ❤️

Jamaica1951 profile image
Jamaica1951

Praying for you and your loved ones. 🙏🏽🙏🏽🙏🏽

Nanny23 profile image
Nanny23

Praying for you and your family. So sorry you have to go through this. God Bless you

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