APS Treatment in Oxford

I am female, in my early 70's and diagnosed with SLE, APS and Evans Syndrome.

I am planning to move, probably to the Oxford area. Can anybody help me with information and recent experience of treatment at the local hospitals?

Penelopepops

[HollyHeski Administrator]

Hi, if you have a look at our recommended specialists list - top right hand corner under pinned posts.

Also our charity web ghic/world as there are further specialists on there as well.

Hopefully someone will come on and answer you from that area with personal experience.

Good luck with your move.

[MaryF Administrator]

Hi, it is good to ask people on here for their local knowledge and as previously said the charity website: ghic.world/ and also some under 'pinned posts' over on the right hand side of the forum. Or a train to London as many specialists there. Best wishes. MaryF

[Lure2]

Hi there and welcome to this wonderful site for people with Antiphospholipidsyndrome.

I am also in the middle of my 70´s and therefor I wonder how long time you have had all these illnesses. We know that SLE and APS often go together. APS usually starts if not with loosing a baby at a rather early age, so in the middle of the 40´s.

I live in Sweden and it started with neurological symptoms (TIAs) but I was not properly anticoagulated with Warfarin (feeling much better) until 7 years ago and now I have finally reached the INR of 4.0 and feel ok.

I wonder if you have read "Sticky Blood Explained" by Kay Thackray? She has APS and it is a good book also for relatives to understand how it is to live with an autoimmun illness like APS.

Hope you stay with us here and that you now will find a Specialist of autoimmun illnesses who is well knowledable of especially APS.

Kerstin