New member.: Hi. I'm new. I have a... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Dhj88 profile image
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Hi. I'm new. I have a sharp pain that moves constantly. I'm in the process of getting my heart checked out but we're pretty sure that it's not the cause. This pain jumps frequently. One minute it's my nec and then my chest, then my back, and a new spot last night was my foot. This site is spot on to what I'm feeling. Does it sound familiar? Any feedback would be appreciated. Thanks.

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Dhj88 profile image
Dhj88
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HollyHeski profile image
HollyHeskiAdministrator

Hi, welcome to our forum, to answer your question, I need to ask my own - Do you have a diagnoses for Hughes/antiphosphilipid syndrome?

I ask this as we all suffer on here with 'Sticky blood and clots' and our answers can only relate if you have this disease?

Its good your getting your heart looked at, as any new or prolonged pain in the chest area should be seen by a doctor.

MaryF profile image
MaryFAdministrator

Do you have a diagnosis for Hughes Syndrome/APS? MaryF

GinaD profile image
GinaD

I will repeat the questions asked before regarding an official diagnosis. I can not recall reading symptoms closely resembling yours associated with APS. The pains I have experienced, and recall reading from others, were caused by moving clots , and might involve a given leg, or arm, or a clot in an appendage moving from there to a lung. Also, pain from blood clots does not move rapidly-excepting a pulmonary embolism,aka, a PE. Rather, the clots form, the body reacts with pain some hours later, and then the clot may slowly " go with the flow," or break loose and travel elsewhere, reforming. I have had DVT clots in my leg slowly move uo the back of my thigh over several days before finally going away. But jumping frequently from place to place? Not in my case. A clot's journey follows a venous or arterial route. the exception to this observation would be an acute form of APS called " CAPS." But that seems to result in symptoms that send one to the ER as many serious clots are formed simultaneously. Good luck on your diagnostic journey.

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