We are now over 6000 Members - Hughes Syndrome A...

Hughes Syndrome APS Forum

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We are now over 6000 Members

MaryF profile image
MaryFAdministrator
10 Replies

We have passed another milestone for members joining on here, now we are past 6,000, best wishes to you all.

youtube.com/watch?v=lmIFXIX...

MaryF

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MaryF profile image
MaryF
Administrator
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10 Replies
linda96 profile image
linda96

You know how you want to celebrate... but then realise you're not quite sure what you are celebrating?!

So that's 6000 reasons for more research? Yay!

MaryF profile image
MaryFAdministrator in reply to linda96

Yes I know what you mean! MaryF

GinaD profile image
GinaD

Thanks Mary. That video is the perfect celebration.

MaryF profile image
MaryFAdministrator in reply to GinaD

Yes it is rather good. MaryF

SoulRebel-APS profile image
SoulRebel-APS

Wow thats great. It would be interesting to break it down my membership by country. Loved the year im 40!

Wittycjt profile image
Wittycjt

Great now we all have to teach at least one doctor each about what it is and that it's out there and they need to get educated about it🎈🎈👀🎈🎈💕

Lure2 profile image
Lure2 in reply to Wittycjt

The big problem for all of us 6.000 is to find a Doctor who is already educated and knows what APS is. Find that Doctor is our big challenge and to stay with him!

Kerstin

Wittycjt profile image
Wittycjt in reply to Lure2

That's much easier said then done ☹️

jetjetjet profile image
jetjetjet

I see many doc's to put it mildly -and even the nurses- i always talk about it ,some ask for info of which i direct then to the site for the general public - still all kinds of info on there . i have helped with the Dia. of 3 woman in my 7 years with APS Their Doc's knew they had a blood disorder BUT that was it and directing to our knowledge on the sites and telling them what to do for tests has proved to work -- The Doc'd just don't know . England it seems to me is the only country that has it tested in young woman if i read it correctly. If every one of us talk about it to any Medical - insurance people the word does get out and that seems to be something we all can do .The best being the aps sites. like ours { not the health unlocked } but the general site . I have had positive feed back from the ones that actually did visit it . so that's a good hing . My nurses in my PCP'S office are MORE up on the APS than almost all of the DC's . I talk to them at 2 or 3 times a week basis . So it does work grteat ideas above and great job Mary on the video . Thank You

Lure2 profile image
Lure2 in reply to jetjetjet

Hi Jim, I will be thinking of you on Thursday for the operation!

I wish you everything good and blessings!

Kerstin

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