Hi to new members...& everyone else t... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,352 members10,541 posts

Hi to new members...& everyone else too! :)

Suzypawz profile image
7 Replies

Hi to all our new members by the way...I have had to take time out due to personal problems but am back now :) so I havn't had the chance yet to say hi to you....so here you go...HELLO :)

Sorry to hear you have had to come on here for having Hughes or suspected Hughes....but at least you can get some support from here & maybe some advice & help on Hughie subjects.

Hence the pic'!! hang on & get some support with people who will understand you.

So hi to:

sarahlou1801,

Potsy,

VBAustralia,

monicajimenez,

kinrossman,

marco_mustard,

gibby4,

Littlepikey,

prj789,

Hopingforababy,

JaysMom,

Willowlake,

whitefang54,

Roxiechic,

CarolB22,

doreenA3,

jennifer350,

Elskemu,

bcod,

Nubianprof,

darrell62,

CatherineHeaton,

Kazzapeaky,

pickleshk,

tamlis,

Kinger,

sallysheila,

mudge44,

Krysta,

colinh.

Speak to you all again soon and hopefully help in anyway I can via here.......hi also to everyone else I already know or just getting to know! :)

Hugs to all, Sue xx

Written by
Suzypawz profile image
Suzypawz
To view profiles and participate in discussions please or .
7 Replies
jessielou profile image
jessielou

Hi hon,

Glad you're back, I too have been hiding not been well, but hoping to be around much more after my wedding, two weeks to go, yeah!!!!

I also would like to say Hi to all our new members and a big welcome.

Take care gentle hugs love Sheena xxxxxx :-) :-) :-)

Suzypawz profile image
Suzypawz in reply to jessielou

So excited for you hun :) about time!!!!! congratulations to you both...you're a lovely couple xx

SueLovett profile image
SueLovett

Hello pal,

Pleased your back pal x

Didn't know you were getting married Sheena, hope you have a wonderful day. Xx

Suzypawz profile image
Suzypawz in reply to SueLovett

I'm glad I'm back now :) hi bud xx

jetjetjet profile image
jetjetjet

Well my LOVELY it;s nice to hear your ok and doing good- long time no speak {or message} hopefully the speak will come soon and not soon enough- i miss talking to you and our Sheena, soon to be a Misses HOORAY--- glad to hear you are good'. I E mailed you my new E address - but you naughty thing you __ no reply -so be a good doobie and E me Thank You ME.--- miissed ya

Suzypawz profile image
Suzypawz in reply to jetjetjet

Yes bud, I hope to stay back now...all being well!!

Yeah our Sheena soon to be a misses & me to be a miss!!!!!!!!

I will check my emails now bud....havnt looked at them for a while, will try to keep up again now :)

Keep well & smiling matey :)

Suzypawz profile image
Suzypawz

Well the government did the inevitable! ...they took the Dla away!!! I was struggling keeping my head above water as it was! do they not realise the effect it can have on us?!! with this it helped me only consider going part time employment...but now may have to consider gong full time! I know now what effect that will have on me & Hughes! When I read the letter I had a relapse for 3 days.....

It pays for my gym membership to keep me where I am today....mobile most of the time.....

Pays for my trips to hospitals...including London!......may have to consider not going as often because of funds now....

Just in general it helped me get around......they just don't see the effect at all do they?!!!!

I knew it was coming as I consider myself not as bad as others most of the time....so I was just waiting......

Seen C.A.B. yesterday for advice on this...also my divorce to start going through...have another appointment on Tuesday...I'll let you know how it goes & if theres anything we can possibly do.....

Hugs to all, just thought I'd post an update xx

You may also like...

New diagnosis - not sure if there is something else too.

New Member with APS - Seeking Advice

than I, had his left leg amputated due to a blood clot a few years back. Having found the Hughes...

Hi everyone

thinks I am being lazy. I look forward to getting to know you all 😄

Hi, new to this community and looking for advice/help with my symptoms.

She confirmed I had Hashimoto's and also suspects Addison's. The reasons she suspects I have...

New member

I am a new member only diagnosed with APS in April following discussion with Neurologist over the...