Hi all, I've been recently dealing with some weird issues, and I am trying to figure out if it's due to my APS or something else. I figured if anyone can relate, it will be here...
Just a background first...I was diagnosed with APS the summer of 2016 following a branch retinal occlusion in my right eye. It left me with limited vision in that eye and I was put on Rivoraxiban 10mg. This is not my first autoimmune disorder as I was diagnosed with hashimoto's in 2014. Everything was ok for a few months, but then I started getting temporary vision loss in my eyes lasting anywhere from seconds to minutes. I brought it to the attention of my GP and he said that I was already on a blood thinner so it couldn't be due to APS. Well, unfortunately he was wrong. The episodes of vision loss became more frequent and at the end of May last year I had a stroke. There was a little bit of brain damage but they said because I was 34, I shouldn't have any long term effects from the stroke. I spent a week in the hospital and a day before I was to be sent home they did an echo test which revealed a massive blood clot on one of my heart valves. I was transferred to another hospital because they figured they would have to replace the heart valve. Before resorting to open heart surgery they first tried to dissolve it with blood thinner through IV. Fortunately the blood thinner worked and I was able to make a full recovery. I was released and put on Warfarin (INR 2-3) and Plaquenil.
Since then I have had monthly INR checks at the lab and it has fluctuated between 2.5-3. For the most part I have been living a normal life, eating a good diet, no alcohol and making sure I take my meds.
Around December 2017, I randomly started getting these weird feelings. It's hard to explain, but its almost like a brief feeling a deja vu, or like that feeling you get when you see a cop while speeding, or finished working all day and realized you did it all wrong...I know it sounds silly, but is that gut sinking, flushing feeling. It just comes out of nowhere and lasts seconds. Its usually followed by a feeling a detachment of de-realization. It's just...weird. It has only occurred a handful of times but after it happens I feel off for the rest of the day.
I brought it up to my doctor and he sent me to talk to a psychiatrist for anxiety. The psychiatrist did some tests and said these feelings could be mini anxiety attacks due to post trauma. I asked about if they could be TIA's and she couldn't give me a yes or no answer. The doctor said that is might pass with time, and sent me home with some literature on dealing with anxiety.
This may be the case, but my gut feeling tells me that its not anxiety. I am normally a very upbeat, positive person and I try to stay busy. These feelings are completely random and I can go months between them. But its the same feeling every time it happens. I am just frustrated and looking for someone that might be able to shed some light on this matter. Sorry for the novel, but that's my story.
Thanks in advance....