I had a PE 2 weeks ago & now taking 30mg Xarelto. I'm 66, non-smoker, healthy, until this event, which I was told in ER was on the low scale of seriousness. My primary doc told me this was just a blip, I'd be on blood thinners for 4 months & move on. Then, my blood tests came back with an abnormal "lupus anticoagulant" reading, and although my doctor says I need to be retested in 12 weeks, he has already listed Antiphospholipid antibody syndrome under "conditions" on my online chart. Isn't he jumping to conclusions before he has the retest results in?
He told me if the retest is positive, he will refer me to a hematologist and I'd be put on warfarin for an indeterminate period of time. I'm guessing that means for life.
How does someone develop APS? This is so out of the blue that I'm stunned.
For those of you with the APS diagnosis, are there other complications beyond blood clotting? And, how did you adjust your lifestyle to being on warfarin?
I'm still in shock/denial, so getting more info about this condition will help me work through it. And, if you have any overall advice for me, I'd greatly appreciate it. (I'm in Colorado)