I am praying luck is on my side & I see a consultant that actually consults ....whats more one that knows about autoimmune inflammatory diseases.
I recently went to see Prof McHugh in Bath but still awaiting for the full blood results.
The Prof wants me to go to coping skills.....what I wont to know is what the hell I am coping with....a diagnosis would be nice. This is before he has got my results !
I am under an endocrine clinic in Oxford for my underactive thyroid & hypoparathyroidism.
When I were last seen in clinic my calcium was very low & my Crp was once again raised showing something inflammatory is going on....... I have been telling him that for years. It is very sad we have to go down this traumatic road & trust me I have been down many......not only am I traumatised I am exhausted with it all, I am feeling so poorly.
I cant even cry anymore my emotions are so screwed up...i'm living a life of pure hell.
I wish I could put the photo's on site that I showed to these consultants....I think many would be shocked at the state of me......but due to my blood results my symptoms have been ignored.......If only they looked outside of the box I might get some answer's but it seem's they have all read the same txt book and if your blood is not in the correct margin they look no further.
I cant take any more so praying this one I am seeing today can shed some light at the end of this long dark tunnel.....I have had enough of sitting in consulting rooms with patronising consultants.........Do any of them look at the whole picture have they not heard of seronegative ? Is it that hard to see I am very unwell and in need of help ?
Photo was taken during on of my many crisis episodes.