Itchy rash all over my body - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,356 members10,544 posts

Itchy rash all over my body

Toshiba666 profile image
6 Replies

Hi can any one tell me what I might have. I have a itchy rash all over my body and it itches like mad, especially on my neck ;arms and face . Thanks for your help.

Written by
Toshiba666 profile image
Toshiba666
To view profiles and participate in discussions please or .
6 Replies
Wittycjt profile image
Wittycjt

Toshiba666?

Lure2 profile image
Lure2 in reply to Wittycjt

Something wrong? What do you mean?

Kerstin

share-a profile image
share-a

That itchiness all over is exactly what is happening to me and getting worse. No rash. Just itching. Drives me nuts! I donated blood and got a letter saying they didn't want any more of my blood, and that I have HTLV I and II. My doctor, who is 80, said they don't know anything about it, and there is nothing to do about it, but on line it lists 10 symptoms of it, of which I have eight, and one was this itching.

It also said, quote: All patients with HTLV-1 or HTLV-2 infection should be counseled extensively on the lifelong implications of their infection (see Patient Education). [43, 44] The tx of adult T-cell leukemia (ATL) is the same regardless of the presence or absence of HTLV infection. Scary. I've been trying to find a doctor for the six months that I've know. There are two in MD, but I'm in CA.

Lure2 profile image
Lure2 in reply to share-a

Hi share-a;

We spoke first 3 years ago and then 2 years ago and you and I are the same age - 73 years old. I live in Stockholm/Sweden.

How did it go for you to find an APS-Specialist as we suggested? Did you do those blood-tests wanted?

Where are you situated? What do you mean with CA?

You must get a referral from your GP to someone who can do the blood-tests required for your symptoms. i do not know what HTLV-1 or HTLV-2 is but I think you spoke of RA and Lupus also 2 - 3 years ago?

Best wishes from Kerstin in Stockholm

share-a profile image
share-a

No rash. Just itching.

MaryF profile image
MaryFAdministrator

Agreed. and of course of forum is monitored due to our known two trolls and their locations! MaryF

You may also like...

I'm back all ( in body anyways }

morphine patghes on my back i have to have changed every 7 days --they also have me on 2 more pain...

APS Rash& weight gain! As if feeling horrible all day isn't enough!

common to have the rash be so wide spread? Also am I the only person that has put on weight, like...

Wracked w pain all over at least once a month

started having episodes ?flares where I feel like my body is under attack and I feel pain all over....

Itchy and very tender scalp

suffer with an itchy and extremely tender scalp? Mine has been ongoing for a long time. I have no...

Why is my body sore to touch

kills its like a icy pain and its makingm e feel so rough anyone know what I'm talking about thanks