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Hughes Syndrome APS Forum

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Advice please🙂

Gilliansimba profile image
•9 Replies

Hi everyone can anyone explain plaswvwhat a weak positive blood test is for antiphospholipid antibodies means, I have it myself and I have a family history,,but this has just came back in my sons blood results, has to be repeated in 12 weeks?

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Gilliansimba profile image
Gilliansimba
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Manofmendip profile image
Manofmendip

Hi

If his test is still positive in 12 weeks time then that would be a confirmed diagnosis of APS.

However, some people are what is called seronegative APS, which means that they test negative but the clinical symptoms indicate APS.

Let us know how he gets on.

Dave

MaryF profile image
MaryFAdministrator

It is very important to have all the tests done, and at least something has shown up, however as advised by my co administrators sero negative does exist, and his medical history and symptoms must also be taken into account, and of course a trip to the correct specialist, as you will be aware we have a list on the right hand side of our forum. MaryF

Gilliansimba profile image
Gilliansimba• in reply toMaryF

Thanks Mary, how do I go on the right hand side of the forum I've been clicking on everything to no avail.

MaryF profile image
MaryFAdministrator• in reply toGilliansimba

Here you go, a pinned post from the right hand side: healthunlocked.com/hughes-s...

MaryF

Tbunny1 profile image
Tbunny1

My hematologist said I had the highest positive he had ever seen, but did not know of a correlation. Any positive is a diagnosis, he said, regardless of how low or high that test comes back. Both of my younger brother have apps as well, and we all test 'highly' positive for IgM. Perhaps your sons doc just want to make sure it wasn't a lab error or a false positive to repeat the test, but it is my understanding that any positive is cause for diagnosis and treatment, and certainly in light of a family history of this insipid disease.

Bacardibabe76 profile image
Bacardibabe76

You are right, LA is either positive or negative and the other two tests have ranges.

Lure2 profile image
Lure2• in reply toBacardibabe76

Hi Bacardibabe,

When I took Lupus Anticoagulant test, before I was put on Warfarin, my tests always had different ranges like the other two bloodtests to diagnose Hughes Syndrome (APS).

Kerstin in Stockholm

Gilliansimba profile image
Gilliansimba

Thankyou very much for all of your replys I really appreciate this I really don't want him to suffer the way I have for many years & still am, I really wish gps knew more but at least I see a rheamtologist now. My son does have many symptoms off aps unfortunately 😢Xx God bless you all xx

Gilliansimba profile image
Gilliansimba

I went to the gp with him last lwednesday & to see the same doctor on Thursday with my older son, the face she pulled when I walked in again was not very nice lol,it was like she didn't like me think because I knew more than she did about this condition! Oh well I'll keep on going keep fighting it's too easy to give up. 😀

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