Back in the world of the living! - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Back in the world of the living!

Ozchick profile image
7 Replies

I have just spent 3 weeks in hospital with emergency surgery for bowel obstruction. It was thought it may be a clot but turned out to be adhesions and scar tissue causing the pain. I have just not bounced back as I expected to, but I had 2 heart attacks while in hospital, my Raynaud's (usually only in my right hand) went to my right foot with very purple toes, and the naso-gastric tube rubbed through and caused a massive nose bleed for 24 hours before finally clotting off and getting a visit from ENT doctor to suck the clot out-Errk!!!! I've been home for a couple of weeks now but still feeling so tired and no energy. I have a leaky heart valve (new) and Cardio are hoping once the stress of the operation is over it *might* be OK. My Angiogram showed my arteries are in good shape (something had to be OK!) but I have a few follow ups with various doctors over the next couple of weeks.

I have been lurking on here but just haven't had the energy to do much else. Outpatients appointments are probably the same the world over-if your appointment is 10am it means sometime on that day!! After sitting for a couple of hours I just want to get home to bed.

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Ozchick profile image
Ozchick
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7 Replies
Fra22-57 profile image
Fra22-57

Oh crikey.what an experience . hope you are on the road to recovery.all the stress doesn't help you.

daisyd profile image
daisyd

Gosh poor you, had the Doctors taken you off Warfarin.

Just wandered because you had 2 heart attacks, mine was caused by a blood clot hope you feel better soon

Ozchick profile image
Ozchick in reply to daisyd

I'm not on Warfarin but Xarelto. I hadn't had the evening dose (as I went to ED) so had surgery that evening and had Clexane while in hospital and back on Xarelto at home.

MrsMouseSJ profile image
MrsMouseSJ

Hi Ozchick. Sending you good wishes and hope that things will improve for you.

Lure2 profile image
Lure2

Hi Ozchick,

I am also sending you my good best wishes and I am glad that your Cardiolog says that your arteries are in good shape!

A big HUG from Kerstin

Ozchick profile image
Ozchick

Thanks Kerstin, I needed some good news :)

Wittycjt profile image
Wittycjt

I want things things to improve, hopefully the worst is over. God Bless. Rest and heal well my friend, Cindy in NJ

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