Cluster seizures driving me crazy. - Hughes Syndrome A...

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Cluster seizures driving me crazy.

popshaw21 profile image
4 Replies

Anyone else out there who suffers with Deja-vu type seizures? if so please let me know what treatment you have had to cope with this strange Phenomenon.

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popshaw21
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london-lass profile image
london-lass

I see you posted on the gillingham thread. Yes, I used to get them, but when I went on warfarin they stopped, unless I am very tired or low inr.

Good luck with it. Ann

Aschlong profile image
Aschlong

I actually felt at the time that I could never explain those episodes to anyone, but they did happen frequently - as if building up for a greater event! Literally I'd be left shaking as these feelings overwhelmed all my senses - and I'd be strangely aware of everything? I also knew that something catastrophic would happen - but I'd be alright - eventually! For me it was an RTA with head injury. This is 'me' - I somehow was predicting it - and no way would it be you! So don't overly worry about anything. That was nearly 30 years ago, and since I've never had an episode. In that 30 years, I've been shocked at how beautiful this existence is. Now I live in a loft right bang in the centre of London, always a strong desire, and I have a studio to create some powerful poetry and art, trying to figure out why I seemed to get these strange episodes years ago? I never reply to anything, so there might be a reason why I'm doing this now? Who knows? Isn't it so gorgeous how you're feeling? We are the special ones!

edgewater100 profile image
edgewater100

Coul you tell me how you know they are cluster seizures, were you diagnosed and by who? I have been having these as well, need more info

daisyd profile image
daisyd

I used to have these,I think were caused by damage from Hughes syndrome in my brain, I was diagnosed with epilepsy by a useless neurologist who although treated me with anti epilepsy drugs which stopped them he never believed Hughes syndrome existed

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