Hi just an update! Going to Rheumy tomorrow! I finally listened to y'all and went in ambulance to hospital! Unfortunately no one ther ever heard of APS!!! I laid there for 5 hours b4 Bing helped! They gave me 5 mg of morphine which barley tuk my agony away! Then had CAT SCAN only to find out my T-Spine ( mid-back is deteriorating due to my RA , which unfortunately had JRA as kid and thought I grew out of it! For sometime it was gone only to come back with a vengence! Plus since I've had 6 stomach surgeries had many adhesions from scar tissue! So better I stay on GF Diet cuz when I get hungry, which very rare, I seem to go off of it and pay dearly! I have Sojerns too and my sinuses are drying up too! My sis has APS, but without the blood clotting factor! I'm so relieved cuz the guilt that I gave it to her was overwhelming! Unfortunately she is allergic to cows milk and very upset cuz a big milk lover! I knew that was the case! So her dilemma is GF now, she lost ten pounds, is no milk in diet! Everything has milk! Any suggestions for milk free diet! I told her to drink almond or coconut milk which is D elisions!!! But u can't have anything with milk! Now I'm going back to her allergy doc to have him help me find out my allergies! I'm allergic to many thing that my sis is! I have many medication allergies that send me into anaphylaxis!!! So life becomes more and more complicated as Dr. ERKAN so diligently told me how complicated I was at least 3 times during our visit! Coming from a man of his stature scared the s..t out of me!!! My sis loves my Hemotologist and I'll stick with him instead of a man that just tells me how very complicated I am and just want me for research I'm not a number I'm a human! Lol... Sorry if I insult any of you , but that's how I felt after a while! I would have punched him if he told me one more time how complicated I was!!! It's something u really don't wana hear from a man of his stature! He's an Acadamien and a great researcher and probably wants to help me if allowed to, but his prices are way too high for his help! I just can't afford him! It's so sad, but medicine is a business and if not a big business a Godlike attitude and u become a statistic! Sorry I'm angry at the whole system after going to a hospital and being treated like you're a nut job!!! Hope you all are doing ok and coping! I'm not coping well at all! I'm just fed up and can't deal and just wud like to go Hollistic and stop all meds! My INR being 1.2 on all that blood thinner! The headaches, the brain fog scaring me! My sis one day had to hang up on me cuz I wasn't making any sense! I couldn't remember the simplest words! She just said ur mat making sense and I don't know what ur talking about! Jumble words! The headaches are everyday and I spoke to Hemo and he's thing of putting me on other pills as soon as he sees they work, but he won't now cuz they're not proven to work???
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