Has anyone ever experienced vertigo???

[Debbweb01]

Tonight I went to the kitchen to get a drink and I was flipping all over the place! The room was spinning , not me! But had no sense of balance whatsoever! I hope wen I wake up its gone! Thx in advance for your response!!! Godspeed

[AnnNY]

There is something called Benign paroxysmal positional vertigo. I had this. One night I woke up in the middle of the night and had to hold onto my dresser in order to stay upright. It's caused by crystals in your ears that are in the wrong place. Mine went away after a couple of weeks. But considering the severity of your APS, you should definitely get it checked out to make sure it isn't more serious. Even though Benign paroxysmal positional vertigo is not serious it is intense. I hope it is that but you should get it checked out.

[david1970]

I had one once for a few hours. I got to the hospital. The neurologist there think it was a TIA

[Lure2]

Hi Deb,

Exactly what I experienced before Warfarin! The whole world was spinning to the left and I had to go down on the floor or hold on to a tree for perhaps 3 - 5 minutes. Horrible.

Kerstin

[CormorantWatcher]

I've had it in the past - high INR on one occasion, ear infection on another.

Take it steady and get it checked.

[Lure2]

I had a lot of these different neurological symptoms (doublevision, lost my vision on the lower half part of my right eye, vertigo, sudden severe pain from one side of my head for a couple of minutes) and was remitted to the best Specialist we have in Sweden for balance-problems.

He said that I had micro-embolies and should try Warfarin and after anticoagulation my symptoms reduced and finally disappeared when I was over 3.0 in INR and also stable. I also sometimes saw my own heartbeats in my eyes like a vertical line.

Kerstin

[leakeadea in reply to Lure2]

Hi Lure2,

I stumbled upon your post while looking up some of the symptoms I've been experiencing for the past 22 months or so.

Last year before being put back on anticoagulation, I was having periods of slurred speech, vision disturbances in one eye (double vision, part loss of vision) and weakness to one side of my body.

The Stroke doctors I saw believed I'd had more TIAs however prior to these symptoms and since taking apixaban I am still experiencing sudden onset vertigo, usually triggered by a sudden acute pain to one side of my head. I also have periods where my vision is so blurred and I stumble to one side like I'm drunk and I cannot think straight and just stop speaking mid sentence because I cannot remember what I had been saying the moment before.

I recently got hold of my old medical records going back seventeen years and was shocked to see that I had been experiencing these kind of neurological symptoms, many years before I had my episodes of DVTs, PEs and TIAs in 2005-2008, I had no idea that these symptoms could be linked to my clotting issues.

I really need to find a doctor who can put all these symptoms together and make a proper diagnosis!

[Lure2]

Hi Deb,

Hope you feel better now. You should report this to your Consultant as this has to do with APS no doubt and can be a TIA or microclot.

Best wishes to you from over the ponds

Kerstin

[jbrking]

I woke one morning like this, felt sick and like I had the worst hangover ever (even though I don't drink anymore). Anyway it didn't ease so went to doctor and it was labyrinthitis and needed to be prescribed cinnarizine. Had to take for a few months. It's the fluid level within the inner ear that can become imbalanced. I still get it occasionally now but only for a nano second when I first lay down or get up. But I still have the tablets to hand in case it happens again. Horrible feeling.

[daisyd]

I had this for years I think it was caused by APS, I had lots of tests at the ENT department and now take Betahistine which is brilliant,

[Vespa1]

There are some very possible explanations been given. There is something called menears disease that can cause vertigo. This was something my husband was first diagnosed with before TIA's and strokes then Finally some tests revealed APS. He takes something similar to travel sickness pills and is on the whole vertigo free. But as others have said you must get it checked out for anything else. Keep us posted.

[Ozchick]

The dizziness and blurred vision happened on a daily basis for me - I didn't drive or go for a walk alone for some time. Once properly anticoag'ed might only happen now once a month or less and much more transient.

[Debbweb01]

Thx so much for all replies! Very helpful and thoughtful! I go to doc on Friday and I'll tell him about it thx! Hope you all are well and happy! Thx again

[Hughes-Comrade]

Before dx I reported to the doctor that the ceiling was running like a treadmill. I think he thought I was nuts. I would also have like a parallel shuffle when looking at still objects. Best way to explain it was two things side by side, one would slide forward and one would slide backwards, repeat slow motion. Looking at designs on carpet... same thing. It's called oscillopsia, last paragraph.

The only place I've been able to find anything about it was :

en.wikipedia.org/wiki/Antip...

Partial report:

Signs and symptoms

The presence of antiphospholipid antibodies (aPL) in the absence of blood clots or pregnancy-related complications does not indicate APS (see below for the diagnosis of APS).

Antiphospholipid syndrome can cause arterial or venous blood clots, in any organ system, or pregnancy-related complications. In APS patients, the most common venous event is deep vein thrombosis of the lower extremities, and the most common arterial event is stroke. In pregnant women affected by APS, there is an increased risk of recurrent miscarriage, intrauterine growth restriction, and preterm birth.[2] A frequent cause of such complications is placental infarctions. In some cases, APS seems to be the leading cause of mental and/or development retardation in the newborn, due to an aPL-induced inhibition of trophoblast differentiation. The antiphospholipid syndrome responsible for most of the miscarriages in later trimesters seen in concomitant systemic lupus erythematosus and pregnancy.[3]

Other common findings, although not part of the APS classification criteria, are low platelet count, heart valve disease, and livedo reticularis. There are also associations between antiphospholipid antibodies and headaches, migraines, and oscillopsia.[4] Some studies have shown the presence of antiphospholipid antibodies in the blood and spinal fluid of patients with psychological symptoms.[5] Very few patients with primary APS go on to develop SLE.