Important new from Hughes Syndrome Foundation regarding European Forum on Antiphospholipid Antibodies.

[MaryF]

The European Forum on Antiphospholipid Antibodies has just published the results from a European multi centre trial with good news. It provides evidence that pregnant women with Hughes/APS who still lose babies with the usual treatment (aspirin and heparin) are much more likely to have a successful pregnancy is they are also treated with hydroxychloroquine (Plaquenil or Quinoric in the UK).

This gives hope to all those people out there who still have to go through the heartache of multiple miscarriages without ever having a baby.

(taken from Hughes Syndrome Foundation Facebook page.

MaryF

[Annslack]

Thsts really positive news and to me supportd the benefit of plaquinel for this condition. Thanks Mary.

[MaryF Administrator in reply to Annslack]

Yes good news indeed! MaryF

[schulz]

Do you have any links to that? I've had 5 miscarriages and 2 stillborn babies. The lovenox and apron didn't work for me. Yesterday we for a surprise that I'm pregnant again. Doctor had told me there is nothing new they can do. This gives me some hope, and I'd love the details to share with my doc.

[MaryF Administrator in reply to schulz]

Hi, I am sorry to hear about your history, can you contact KateH directly on here or at the charity, she may have more information, but I did find this: sciencedirect.com/science/a...

MaryF

[louiseamos]

MaryF.hi.I've just been told I've this.and ano her I don't want too understand..bit too late for me.I've lost one babies at 22 week.one 12 week... I've just been told I've all this..and prop lupus. Oh my back?joint's gone too....chest pain since was 22.... I've been too.2 rumotoligist?? Only now they say I've this...I've that rynosdeases??? See.my toes.hands go blue.white.red.no one has spotted my simptons...? I've to go bk in march too start treat meat...ha.can't dam spell...so here I am..just read up. Could of died when pregnant.... Mine got very small has went on..no help.advice.yet.every bone hurts