Long Haul Flight: I want to do my first... - Hughes Syndrome A...

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Long Haul Flight

TJSTICKYBLOOD profile image
12 Replies

I want to do my first long haul flight this year since being diagnosed with APS 8 years ago. I'm on warfarin and have flown many short flights 2-3 hours. I'm a bit nervous about doing a much longer flight, any advice I probably won't see my consultant before I fly.

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TJSTICKYBLOOD profile image
TJSTICKYBLOOD
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12 Replies
MaryF profile image
MaryFAdministrator

Please buy yourself proper surgical stockings and put them on! Also do the leg exercises and move around on the flight...where are you going to? Good to know the lie of the land in case of needing help? MaryF

Lure2 profile image
Lure2 in reply to MaryF

I think Mary has given a very good answer. I agree.

Have a nice trip!

Best wishes from Kerstin in Stockholm

TJSTICKYBLOOD profile image
TJSTICKYBLOOD in reply to MaryF

Mary my vascular consultant said I should not wear surgical stockings as I have an occluded artery in the leg. So if I exercise and make sure my INR is ok I'm hoping that will be ok. I'm not counting on the best medical centres where I go so good insurance too. I really am nervous but do not want to limit my travel experiences

TJSTICKYBLOOD profile image
TJSTICKYBLOOD in reply to TJSTICKYBLOOD

Thankyou for your advice x

MaryF profile image
MaryFAdministrator in reply to TJSTICKYBLOOD

Fair enough, if you have that advice you must follow it, the exercises are good, would they not issue you with Fragmin shots for travel! And of course keeping your INR is key. Where are you going? My Ms Marple tendencies have started up! MaryF

TJSTICKYBLOOD profile image
TJSTICKYBLOOD in reply to MaryF

Mary possibly st Lucia nothing booked yet though.

MaryF profile image
MaryFAdministrator in reply to TJSTICKYBLOOD

BINGO: uwi.edu/VCBiography.asp

MaryFx

TJSTICKYBLOOD profile image
TJSTICKYBLOOD in reply to MaryF

Thanks so much.

Hi TJ - email Yvonne - she's the queen of long haul flights whilst taking warfarin and did a presentation once at Patients' Day called Wandering with Warfarin. She works for the charity so email her directly on: enquiries@hughes-syndrome.org.

Hope you have a fab time :)

Kate x

TJSTICKYBLOOD profile image
TJSTICKYBLOOD in reply to

Thanks Kate

TJSTICKYBLOOD profile image
TJSTICKYBLOOD

Thanks good advice x

Tranquility1 profile image
Tranquility1

For me, it's a must to have hotels with treadmills when I've just gotten off a long flight. If the hotel doesn't have a treadmill in their small hotel gym, then I book a hotel elsewhere. I found this out long before I realized I had the clotting disorder. I just felt awful following long flights, I would get red hot spots on my legs, I would feel like things were passing through my heart. Vigorous walking for an hour immediately upon getting off the plane, and then every day following the flights helped me significantly.

My doctor recently gave me a note saying to: "walk several times during the flight, do exercises stretching the calf muscles while sitting, and avoidance of alcohol and caffeinated drinks."

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