Happy New Year from down under. - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Happy New Year from down under.

Ozchick profile image
5 Replies

Today I feel in top of the world! Took the dog for a 5km walk this morning and he was more tired than me when we got back :) It's a bit warm right now but I'm off to repot some plants and catch up on some housework. Boring NYE for me as I don't drink and went to bed early. Must have been a few sore heads around as the only other people out walking were the fitness freaks!! Some days it feels great to be alive and I take full advantage of them.

Hope everyone finds their "miracle cure" and has a wonderful 2015.

Thanks to the Admin who keep this site going even when they have erratic posters like me;)

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Ozchick profile image
Ozchick
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GinaD profile image
GinaD

As I post this I am I'm bed. It's midnight and the sound of neighborhood fireworks is going off outside my window. This is how I always celebrate New Years Eve.

But tomorrow morning-- early ( Super early!) - I'll be out walking the dog in the dark with a host of stars overhead which I will marvel while my dog savors the latest smells and catches up with the neighborhood doggie pee mail gossip.

Then it's a pot luck dinner with my Trail Club and a hike at Kanawha State Forest.

Happy

New Year!

Jane01 profile image
Jane01

Happy new Year too. Oh, that sounds awesome ! I am glad you have the energy now and it gives newbies starting out like me hope for 2015 too! It is hot here today too... just resting in front of airconditioner, elevating my sore legs and wondering why they look purple ;-)

Good4u profile image
Good4u

Happy new year to you from sunny perth here in Oz. I to generally feel great & more energised except when the weather gets really hot. I find the heat just drains me & air con is my saviour. This site is fantastic help. Best wishes to everyone for 2015. :-)

threesons6237 profile image
threesons6237

Hi ya all. I'm a late joiner from Downunder in NSW. There are many different health issues it seems. So far I am SS sufferer. I'm in my early 70s and my symptoms began about 6 years ago and have progressed bit by bit. One Symptom really disturbs me the most and it is the hair loss. If this continues I will have to get a wig. I am really concerned. My skin has dried up so much too. To make my face feel better I'm applying Lanolin or Nivea all day long, these two products give me the most relief. Luckily for me I am still producing Saliva even though all my mucous membrane is no more! Internally I'm not sure how much damage there is. I wish you all well and a Happy New Year!

Ozchick profile image
Ozchick

Some people on here have the same problem (hair loss) when taking certain drugs. What are you on for APS? I get very dry mouth - it wakes me during the night-and I have a feeling my dentist is financing his next car with my teeth!

Where in NSW are you?

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