Sticky Blood-Hughes Syndrome Support
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Blood spots on toes

Hi All

I wonder if anyone can offer me some advice

Back ground information : I was diagnosed with sero-negative APS after multiple miscarriages and DVT's

Pulmonary embolism, then later Multiple Sclerosis after lumber puncture and MRI showing plaques in brain and spine

I have a new weird symptom if anyone can explain what it is I would be most grateful

I have tiny raised blood spots (very small) all over my toes (just on my swollen foot) giving a rough pitted affect, I tried sanding them down and they bled severely, They do not itch and are not painful. I've also recently started to get tiny raised blisters all over my hands, They are in little crops and appear randomly They burn and hurt like hell ( they wake me up if I'm sleeping) then just disappear after about an hour leaving behind a sore patch of skin that heals quickly

I feel very ill at the moment achy exhausted etc (you all know what I mean!!)

So is this just a random unexplained immune event related to my feeling ill or should I be concerned that it's the start of something new

The only medication I take is warfarin and baclofen which I have taken for 12 years

Thankyou so much for taking the time to read my post, any answers greatly appreciated

Best wishes to you all


3 Replies

Hi there, with any new symptom, do pop along to the GP or our specialist, and do take photographs in case they disappear by the time you have an appointment! Also this does come up regularly on here, here is previous thread:


1 like

As Mary says you should see your GP.

I was wondering if it looks anything like this?

If not there is another condition called Dermatitis Herpetiformis which is connected to Celiac Disease. CD is often something that many of us also have or at least Non Celiac Gluten Intolerance and Prof Hughes always advocates that we don't eat Gluten. NGCI is often the seronegative version of CD!

Dyshidrosis is often misdiagnosed when its DH.

Whatever it is it must be properly diagnosed and treated. I hope this is helpful.

1 like

Thankyou so much for your reply, yes the picture of the blisters in the first link you gave me look exactly the same, There really is no point going to my GP he will just look bewildered and tell me its all part of the same disease and there really isn't much he can do, other than document it, his usual response (he's probably right!) but It's good to know what it is and it is basically linked to my rubbish immune system

thanks again



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