am 54 had 12 PEs 25 yrs ago.past 2 years hav TIAs , mild stroke ,carotid surgery ,flares joint pain ++ANA and just had 2nd mild pos

[Murphy0866]

Anticardiolipin - lupus anticoagulant is negative - waiting for follow up apt but does the sound like APS?- I am on cocktail of drugs inc aspirin, plaquenil persantine and amitriptine

[MaryF Administrator]

Hi there and welcome, it does all sound rather familiar, who is looking after you in terms of care, you need a Rheumatologist or Haematologist or both, let us know where you are located so we can help with further detail. Mary F x

[Murphy0866 in reply to MaryF]

Thanks Mary - I am in Southern Ireland and am under rheumatologist for 6 months and neurologist 2 years for neurological symtoms and ischaemic stuff - also opthalmogy with eye symptoms from ischaemic and macular degeneration - and endocrinologist - Dx with graves aged 9!(had surgery and radioactive 30 years ago) so now on eltroxin

[MaryF Administrator in reply to Murphy0866]

Very common to have Thyroid issues also. We do have some members on here who live in Ireland, and please do take our charity website details to your consultant(s), as it will be of interest to them: Emailing their secretary's addresses (marked for their attention woudl work). hughes-syndrome.org/ Mary F x