has anyone ever had psychometric test... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

has anyone ever had psychometric testing with a neuroscience psychologist ? im currently going through it due to memory issues, disorientati

dawnie1 profile image
8 Replies

i would be grateful of any replies, i dont understand how these tests can diagnose lupus, ms dementia etc. Thank you for your time. i have also got a DLA assessment on 30/09/13 and dont know what to expect. Thanks Dawn x

Written by
dawnie1 profile image
dawnie1
To view profiles and participate in discussions please or .
8 Replies
Leigha profile image
Leigha

Hi Dawnie,

My neurologist offers these tests here in the States, but said they would not benefit me. No, they cannot diagnose lupus or ms, I don't know about dementia. Here is the definition of psychometric testing from Wikipedia:

"Psychometrics is the field of study concerned with the theory and technique of psychological measurement, which includes the measurement of knowledge, abilities, attitudes, personality traits, and educational measurement. The field is primarily concerned with the construction and validation of measurement instruments such as questionnaires, tests, and personality assessments."

Good luck!

Leigha

Lure2 profile image
Lure2

Hie Dawnie1,

I am tested positive to Hughes syndrome. I have met a neuroscience psychologist because my memory has impaired after my TIAs and microclots. After warfarin some of the problems disappeared but as I take warfarin they could not do all the tests. The memory is one of the things that can get affected with this illness. My memory has IMPROVED with warfarin but what is gone is gone.

I talk from my experiance in Sweden but I think it is the same in England.

I guess you have been diagnosed with Hughes Syndrome otherwise you would not have been able to meet a neuroscience psychologist.Good luck!

Kerstin

dawnie1 profile image
dawnie1

Thank you for your replies, as yet i have no diagnosis after 22years on warfarin for blood clots in both lungs ( i have factor five lieden) i have numerous symptoms and they say could be lupus ms dementia and other one but cant remember it xxx

danaja profile image
danaja

I had one run when first diagnosed. The idea was to provide a baseline profile of cognitive function and loss. Since it wasn't run before my illness, the snap shot it provided was of limited value. It did drill down to which parts of brain function were damaged but the doc also made some critical comments that were incorrect. The fact that I was upset and frightened by what was happening to me was interpreted as being depressed and hysterical. Really. Of course you are depressed. You just lost half your mind. Of course you get shrill. You are surrounded by professionals who think this is all in your head. The problem is some of this BS makes it into your record. So,...grain of salt.

SueLovett profile image
SueLovett

I have had tests done by Consultant Psychologist. They were very boring! Some of the puzzles I couldn't do at all. My brain just won't compute these.

I did have a good IQ but this means nothing when there is damage caused by Hughes!

I would like to give you some advice regarding your DLA assessment. Insist that it is recorded. They will try to persuade you not to do this but insist IT IS YOUR RIGHT. Then if they turn you down you have a record of the interview, so that when you appeal the Tribunal will have an accurate picture of what was said.

Let us know how you get on x

GinaD profile image
GinaD

After my disgnosus, which came after a bunch of TIAs/mini strokes/strokes my neurologist suggested that t continue to read long, involved books. Work puzzles. Exercise. And consider taking a foreign language class. No, I didn't come back 100%, but my cognitive function did improve a lot.

Leigha profile image
Leigha

Hi Dawnie,

I didn't say that my neuro is a neurophysiologist, the type that would give these tests. What Gina says above is exactly why he decided not to give me the tests. He felt they would not correctly assess my state. He also felt they can make many people feel nervous.

There are a lot of good comments here.

Again, much luck and let us know how you are doing.

Leigha

panda60 profile image
panda60

I have had tests done twice by two different neuropsychologists and found both very helpful. I knew a bit about testing because I trained as a dyslexia teacher and realised after having had what was described as an incident In 1998 had become like the pupils I was teaching.

First test was 1999 and another one last year when I had TIA symptoms. Both visual and verbal memory tests showed up weaknesses, fortunately not so badly the second time.

My cognitive functioning is not what it should but I have developed strategies over the years, sometimes by avoidance!, it is very frustrating sometimes, but things can improve.

Good luck! X

Not what you're looking for?

You may also like...

Has anyone with memory issues had a neuropsychological evaluation done?

My new neurologist referred me for a neuropsychological evaluation. I've had this test done before...
Jean_12 profile image

Has anyone with APS ever had a bad reaction to Contrast Dye and if so what were your symptoms?

I have recently posted the same question on the SLE site but want to find out if anyone with APS...
leakeadea profile image

Sick Note

Well, off to GP'a tomorrow to extend my sick certificate as still dont feel like I have any energy...
Sue2803 profile image

I wanna know about your APS/hughessyndrome. how you found out you had it, and what your symptomes are.

I just wanted to share my story with someone..(sorry for my bad english, I hope you can understand...
newday3 profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.