Any men taking plaquenil?: Inevitably I... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,356 members10,544 posts

Any men taking plaquenil?

StevePT profile image
9 Replies

Inevitably I have seen many reviews of ladies taking plaquenil with some good and some not so good results.However are there any men (or does anyone know any men)taking or that have taken plaquenil and if so with what results with respect to fatigue relief and /or pain relief?I am just trying to ascertain whether men's results correlate with ladies results or whether they vary.I have come across a theory that plaquenil is not as effective a drug for men as it is for women(unfortunately I have lost the article).

Written by
StevePT profile image
StevePT
To view profiles and participate in discussions please or .
Read more about...
9 Replies
Davidj profile image
Davidj

Been on it for 6 months, I see no benefit. Dr keeps telling me it takes a while. How long is a while ? Do you also have lupus ? Since so Manu men are in our situation I started health unlocked. Mengeupustoo.com if you wanted to throw this out to them.

Sorry not to helpful

David

Tampa Florida

StevePT profile image
StevePT in reply to Davidj

David thanks for your feedback.In fact I have APS but not Lupus.Best of luck in your battles with the silent enemy!

Jade profile image
Jade

My adult son takes it and has for about 6 months he does not feel major results from it either.

jessielou profile image
jessielou

Hi

I know Jet over in the states takes Plaquenil and I believe he's benefited from it, the trouble is with any drug they give us, we don't really know how much it's helping till we stop taking it.

Last winter, I couldn't get to pick up meds and had ran out of Plaquenil, after just a few days without it I felt awful. Took a while once back on them to settle things down.

I hope some of the other gents on here will be able to help hon.

Gentle hugs love Sheena xxxx :-) :-) :-)

jetjetjet profile image
jetjetjet

Hi all i am back { i think anyways- no replys yet } i have been on hydroxy- same thing as plaq and i feel much better with symptoms of fatique-- missed you all jet

BillyBean profile image
BillyBean

Hi all

I started Plaquenil in January 2012 (200 mg) and then doubled the dose in June and have been on it ever since. I have not noticed any difference, it could easily be a placebo as far as I am concerned. As Sheena says we never know if a drug is doing any good unless its effect is really drastic and Plaquenil has certainly not been a wonder cure.

CaliforniaGail profile image
CaliforniaGail

I've been on Plaquenil at least 6 months or so. Previously, I adjusted to the sporadic times of ache/painful "flares" and didn't want to take Plaquenil. It was when penniculitis bumps showed up on my lower legs, which is a lupus type thing, that the doctor told me it was best to take Plaquenil. I told him the bumps didn't hurt (just sore to touch) or bother me, but he said it would help the inflammation in my body. (My tests are always off the charts.)

So, even if you don't feel like it is doing anything for you, it may be decreasing your body inflammation which is a good thing. Our bodies don't need any more of that.

And I haven't had any more marble-like bumps. And no further flares so far, though a bit of Reynauds still.

addisonman profile image
addisonman

Hello

Yes I have been on it a couple of years and it does make a difference to the aches and general wellbeing and I certainly notice it if I stop...

I have Lupus APS and Addisons

StevePT profile image
StevePT in reply to addisonman

Thanks for the input.I read on another question and answer series that you previously worked outdoors in a physically active job.Since my overnight crash I find any physical work well nigh impossible.I presume that your fatigue does not encroach on your work or have you had to change jobs to a less physically demanding one?Are you on warfarin?You live in a beautiful country.I was out there in 2011 and 2012 a few months prior to my onset of symptoms and in my "former life" walked the Tongariro Alpine Crossing twice,the Milford and Kepler tracks and the Queen Charlotte and Abel Tasman tracks.Life is tough at present with my longest walk being about 7 Kim's along a level terrain!Perhaps it's time to try the plaquenil!

You may also like...

Should I take Plaquenil

unless I have an event but is Aspirin enough? Should I take Plaquenil to see if the fatigue/memory...

Any advise against side effects of Plaquenil?

on Aspirin and Plaquenil. I feel sick most of the time and my dizziness is worse. Any advise how to...

Any other men with APS?

was then given the good news. I never really recovered fully from the PE and have since had a...

Does anyone take Plaquenil to treat lupus anticoagulant?

postive as well - suggested hydroxychloroquine (plaquenil) to help think blood and reduce...

Plaquenil, anyone taking this, and have hearing loss?

been taking Plaquenil for about 4 weeks... starting to get some hearing loss, anyone ever have any...