FYI - Hughes syndrome is mentioned in a book review on Queen Anne in the Spectator today. They've done a sensible explanation for a book review (well, it is the Spectator!) and is read by an influential demographic: spectator.co.uk/books/blog/... All v good for awareness.
We also have two full articles with case studies (thank you Mary FB and Teresa) in the pipeline so will keep you posted. One will definitely be in Choice Magazine in April and possibly the Daily Mail.