Hi all havent posted much as I have been trying to sort things in my mind ..I went to.my GP a few months back as I just wasn't feeling right I thought I gad IBS to be honest and I had changed careers ans thought the new job was just taking it out on me from that one visit I found myself having blood test after blood test an ultrasound and a colonoscopy ..lots seemed to be happening and then I had the diagnosis of hep C and a referral to gastroenterology the ultrasound showed apart from some cysts my liver seemed in not too bad a shape . I was told my case was urgent and I was on rapid access and that was it since then despite calling nothing has happened at all ..I do not know what type I am I have no idea what treatment I need ..I feel that I need to start treatment now I am struggling to work every day ..I work 4 days a week but each day with the travel is over 13 hours and I am so exhausted ..I am a 58 year old widow my husband died 9 years ago he had hep C too but this was back in time when treatment was not very good ..I feel I have just been delivered really awful news but there could be a good news day if only I could start my treatment ..it feels like there is nobody who can help me nobody to discuss with ..I know you all had to wait but how long did it take I feel a ticking time bomb inside me and I do find this site helpful on many levels sorry to moan but today my legs are so swollen I feel so awful and my mood is low ..
Still waiting to see somebody - Hepatitis C Trust
Still waiting to see somebody
Hi and I am sorry for your situation right now, I can totally empathise as I was in the dark and dismissed by several Dr's & for several months, I felt exactly as you are feeling now. Good news is once you're in the system things will happen. communications are not always the best, but after a month from fibroscan I personally started my meds 4 weeks after that. if you don't hear anything &it's making you anxious phone the gastro dept
virtual hugs and well wishes 😍😍
Hi Kaz waiting time now has really speeded up I doubt you will be waiting much longer especially as they told you your case is urgent. In Liverpool the hospital told me because the treatment is so expensive they can only take 41 cases a month.And it has to go before a panel first that’s probably why it’s taking a bit longer.Try not to worry to much your time is coming! It will be here before you know it. I went on the 4th of this month and was given the 4th of jan to start. I still have yet to hear anything to confirm that date. But I’m not stressing the communication is not always the best as Nav said.Fingers crossed you get some good news soon. Best wishes Cathy x
There have been times when I felt like that exactly, worried and wondering when my treatment was going to start. Are you drinking plenty of fluids and watching salt intake for that swelling xxx
Yes always careful about my food but this week.feeling really anxious and I have a stressful job dealing with people who are terminally ill or have mental health problems who are in debt ...I have found it hard to concentrate as well xx
I think the time of year is a bad one for anxiety . Would it be worth you visiting the GP at least to get something for the swelling in your legs?
I have seen him he feels he doesn't want to do anything till I see the specialist so I am in limbo xx
Hi kaz,I know it probably seems like youve been forgotten but all of of a sudden it’s all systems go and you get a phone call hope it’s soon 4 you take care.
Thanks all I am having a huge family xmas and am thankful my boys are supportive and my extended family have wrapped themselves around me I know lots of people don't have this so I feel bad at moaning but just a down day thank you all for taking time to be so nice and replying xxxx
So yesterday I finally got an appointment its on 6/2/18
Its the best Christmas present I could have received ...wishing you all a peaceful time and a healthier new year xxx
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