Hi everyone: So sorry I didn't post for so... - Hepatitis C Trust

Hepatitis C Trust

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Hi everyone

Lucien777 profile image
Lucien777
β€’23 Replies

So sorry I didn't post for so long, bit have been reading posts in the background 😊 just wanted to let you all know, that my 3 month bloods came back as target undetected still πŸ˜€ I was told that there was a policy change in UK where they now don't do a 6 month blood test anymore to say you are cured, but declare you cured after the 3 month test 😎 my nurse isn't so happy with this and sneaked another blood test in in November though lol. Hope you are all keeping well, and many thanks again for supporting me through this treatment 😘 I'm feeling ok, but some things like joint pain haven't gone away, like I was hoping, I suppose not all my health issues were cause by the Hep C, but at least I'm rid of that now 😁 all the best to you all, lots of love πŸ‘πŸ’•πŸ‘XX

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Lucien777
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navigatinglife profile image
navigatinglife

Hi lovely, glad to hear you're cured πŸŽ‰and that you're having another test in 6 mths for reassurance. I have mine 9 months after the last along with fibroscan. Yes I have lots of random pains & stuff but I m blaming the meds for mine. I also think we'll need 2 yrs to recover from all the chemicals. Only a theory but keeps me sane. ..just πŸ˜‚πŸ˜‚πŸ˜˜

Lucien777 profile image
Lucien777β€’ in reply tonavigatinglife

Hi nav☺️, glad you are managing πŸ™ good to hear from you 😊 I was wondering sometimes, if it is some remnants of the meds that give me all these niggles, if anything I blame the Ribavirin lol! I didn't have a fibroscan for two years, they didn't even do one before treatment nor after. But since they will only phone me with the 6 month results, I don't think they will do one again. They were ready to discharge me on the 21/8 maybe I should ask for a final scan πŸ€” glad you are as well as can be, so lovely to hear from you! I'm off to work in a mo, have a good day πŸ™πŸ‘πŸ˜ŽπŸ˜˜

Sillysausage234 profile image
Sillysausage234β€’ in reply tonavigatinglife

Hi navigating too quietly nice to see you and Lucien make an appearance 🌞hope things are on the up for you xxx🎡🎢

navigatinglife profile image
navigatinglifeβ€’ in reply toSillysausage234

Hi lovely, unfortunately I ve been worse 😱 having an ultrasound on Thursday so hopefully it will enable a treatment plan. I surely am due a year off soon πŸ˜‚ hope you're keeping well xx

Lucien777 profile image
Lucien777β€’ in reply tonavigatinglife

Hi nav, sorry to hear that πŸ™ hopefully they will get something sorted for you soon though! Are you awaiting another treatment? I keep all my fingers and toes crossed for you, let us know please what the outcome is πŸ™πŸ€πŸ€πŸ€πŸ€— you definitely deserve a long long holiday πŸ–οΈπŸοΈπŸŒž all the best to you xx

navigatinglife profile image
navigatinglifeβ€’ in reply toLucien777

Thanks. I have liver damage which I didn't have before treatment, hoping it isn't worse. They think it's my gall bladder also. Never been this poorly even with hep c. Drinking ginger & turmeric in hot water. So uncomfortable and sick. Just unlucky, but I also think the meds were too strong maybe for a tiny person. I haven't given up hope. Big hugs for you 😘😘

Sillysausage234 profile image
Sillysausage234β€’ in reply tonavigatinglife

Oh dear you are having it rough let us know how you get on

navigatinglife profile image
navigatinglifeβ€’ in reply toSillysausage234

Yes will do. 😍😘

Jane7171 profile image
Jane7171

Congratulations Lucien!! So happy to hear it!! πŸ‘πŸ‘πŸ‘πŸ’–πŸ‘

It's good news!

I am on week 9 of treatment. At week 4 I was declared negative! Counting the weeks till I am free from these drugs.

πŸ™πŸ’–

Lucien777 profile image
Lucien777β€’ in reply toJane7171

Thank you 😊I wish you all the best, well done for getting so far through treatment πŸ‘πŸ˜Žthe last few weeks will hopefully just fly by for you, and before you know it, all this will just be a distant memory πŸ™πŸ˜€ xx

Sillysausage234 profile image
Sillysausage234β€’ in reply toJane7171

Good for you πŸ™Œ what was your meds Jayne 007

Jane7171 profile image
Jane7171β€’ in reply toSillysausage234

Viekira Pack with Ribavirin. πŸ‘ŠπŸ‘ Really tired. Today not a good day and my stomach is really bad for the past 24 hours. Also my sleep is a mess. 🀣 But I am staying positive. πŸ™πŸ’– Thankful for you all here. βœŒπŸ‘πŸ˜ŽπŸ€Έβ€β™€οΈ

3.5 weeks left. πŸ‘πŸ‘πŸ‘

Jane7171 profile image
Jane7171β€’ in reply toJane7171

Sorry Viekirax pack!! πŸ™ŒπŸ˜Š I love my medicine! πŸ€£πŸ™πŸ€£πŸ‘ŠβœŠ

Trying to keep it positive!

Sillysausage234 profile image
Sillysausage234β€’ in reply toJane7171

You ribo girls are amazing as I’ve heard about how aggressive it is ,I got off lightly with my epclusa treatment ,after 25 years of having hep c it was gone in 4 weeks hope the next couple of weeks goes quickly for you take care xx🌞

Sillysausage234 profile image
Sillysausage234

Hey the girls are back🌞it’s been a ghost site again lately ,but good people are moving forward now and picking up the pieces xxxxπŸ¦‹πŸŒΈπŸπŸžπŸŽΆπŸŽ΅πŸ˜Š

Lucien777 profile image
Lucien777β€’ in reply toSillysausage234

Hi Alan, good to hear from you ☺️ Hope you are doing good!? πŸ™πŸ‘πŸ˜ŽπŸ˜ƒ I have been working non stop since finishing treatment, and now I'm knackered from work all the time instead πŸ˜…. Always here reading posts in the background, but don't always get time to reply or forget haha. Really lovely to hear from you πŸ˜ŠπŸŒΌπŸžπŸ¦‹πŸπŸ––πŸ‘

Sillysausage234 profile image
Sillysausage234β€’ in reply toLucien777

Hello there🌞nice to hear from you😊glad you keep an eye πŸ‘ on the site me too but it goes quiet sorry no cara I’ve messaged her I think ille have to go to Amsterdam and she if she is there take care

Lucien777 profile image
Lucien777β€’ in reply toSillysausage234

Lol, oh yeah that's where she probably is!! πŸ˜‚πŸ˜‚πŸ˜‚now it all makes sense πŸ˜†πŸ€— you take care too! πŸ˜ŽπŸ‘

Lucien777 profile image
Lucien777β€’ in reply toSillysausage234

Alan, any idea where Cara went πŸ˜…or how she is doing?

Sillysausage234 profile image
Sillysausage234

πŸŒžβœŒπŸΌπŸ˜ŠπŸ’•πŸŒΉπŸŒ·πŸ€πŸ¦‹ xx

Coolninja807 profile image
Coolninja807

Hi and thank you for your reply!!;)i'am soo happy 😊 to hear your undetected and that sounds like a cure!!You have gone through a journey.i'am feeling relief to have gotten treatment and will see the doctor on sept.10th for the results of my 3 month labs post treatment ...i will post a update.in the name of jesus it still shows undetected..take care and live to the fullest!i can't wait till the waiting is over

Lucien777 profile image
Lucien777β€’ in reply toCoolninja807

Not long now for you, my nurse said that no one at our hospital that was clear by end of treatment, wasn't still clear after 3 months πŸ˜ŽπŸ‘πŸ™πŸ€πŸ€πŸ€the odds are totally in your favour πŸ€— yes please let us now πŸ˜ƒ

Coolninja807 profile image
Coolninja807

❀ i most definitely will.i love hearing the great outcomes..it gives much hope to others

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