Alone and scared : I have hep c waiting to... - Hepatitis C Trust

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Alone and scared

Phillipaussie profile image
19 Replies

I have hep c waiting to start treatment feel isolated,family members ostracised me about this,suicidal thoughts,sickness and stigma are a daily thing.totally gutted,feel like a Montreal dog.

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Phillipaussie profile image
Phillipaussie
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19 Replies
Sillysausage234 profile image
Sillysausage234

Good luck going forward .alan

Phillipaussie profile image
Phillipaussie in reply to Sillysausage234

Thanks Alan.

Sillysausage234 profile image
Sillysausage234

Don't know what a Montreal dog is but can imagine,if your getting treatment soon you've got a plan.hep c is like having leprosy the isolation and stigma,but that will pass when you get clear of it...good luck.alan

Phillipaussie profile image
Phillipaussie

I meant to say Mongral dog,your right,isolation and stigma.

navigatinglife profile image
navigatinglife

Hi,

Just caught up with your story. yes I too am feeling somewhat isolated but I find being alone and peaceful is helpful for me. I prefer sharing on this forum as everybody in the same boat so to speak. I haven't told many people and those I have I am backtracking, the stigma! Quizzing etc

I hope you can find some relief and support here. chat anytime. I too am awaiting treatment.

virtual hug

Londongal profile image
Londongal in reply to navigatinglife

I wish you luck.x

Phillipaussie profile image
Phillipaussie

Wow, thanks for that, virtual hug right back to you.

navigatinglife profile image
navigatinglife

You are welcome 😊

Keep posting, and updates on your treatment etc

Best wishes

Sillysausage234 profile image
Sillysausage234 in reply to navigatinglife

A hug from me too..😊 Best of luck keep posting,..alan

navigatinglife profile image
navigatinglife

Group hug 😂😂😂

Londongal profile image
Londongal

Sorry to hear your having a horrible time, but try and keep positive. I hope you don’t have to wait too long for treatment. While you are waiting, focus on looking after your health and stopping any bad habits you might have, junk food, smoking and alcohol etc. You know, all the fun stuff. It will help when you start treatment and will also help to make you feel less helpless.

You will find a lot of support on this site as I did, so do keep in touch.

We’re are here for you before, during and after treatment. We may not have all the answers, but at least you know that we understand what you are going through. You are not alone.

All the very best

Khalisse.x

Sillysausage234 profile image
Sillysausage234 in reply to Londongal

Nice reply khallise,hope you are well..alan

Londongal profile image
Londongal in reply to Sillysausage234

Thanks Alan. Still battling, but good today, thanks.

How are you? Well I hope.

Sillysausage234 profile image
Sillysausage234 in reply to Londongal

Today has been one one of my better days too Khalise thanks..alan

Phillipaussie profile image
Phillipaussie

Get a good daily dose of positive encourament, really glad I found this site, good luck all,cyber hugs for all.

L444 profile image
L444

Listen you are not alone I was diagnosed recently after a routine pre job. Screening shocking part of the treatment is trying to find the positive I m trying my best it’s hard but you can do it be kind to yourself patient with yourself and others take care chat anytime I’m here

SimonHM profile image
SimonHM

You will get through this. As for suicidal ideations - I have been in that dark place twice and I won’t go back there. You can do this , your not alone. We’re here beside you

Phillipaussie profile image
Phillipaussie

Simon, Thankyou so much, I'm in a really dark place and have hovered there awhile now, I really do appreciate your kind words and support, I have gone from a 6ft 4 in can do type of bloke who is afraid of nothing, to a quivering wreck in the space of a year, don't start treatment till jan so have it all in front of me, this has wrecked my life, after what I have read about you and what you have had to put up with I'm certainly glad to have you on side, so to speak.Really cant thankyou enough, I am extremely greatful.

Kaz1959 profile image
Kaz1959

Hi all I was only diagnosed 2 weeks ago I was furious at first to be honest and I felt people would judge me but I have found the opposite..most people that know have reached out and offered me support ..I have been honest with people who have asked me what is wrong and I found that all so far have been really great about it ..my husband was diagnosed years ago and then he was basically a guinea pig for new treatments .unfortunately he passed away almost 9 years ago and I thought I would have same problems he faced trying to get treatment and being stigmatized ..I have so far been surprised I have already had lots of tests and been immunised against lots of things ,I am waiting now to see a consultant and told I have rapid access so I am hoping I will be seen quickly...what is frying my brain though is the more I research and read all I can I am becoming more and more confused as to what is best way forward ..I am concentrating on keeping myself well and have always been.quite fit but my fatigue is awful and also.I find walking difficult as my legs are swollen and they ache so much ..anyone any thoughts on what questions I need to ask ..I have found these threads and this site a godsend xx