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severe palpitations post ablation

dadfrogboy profile image
14 Replies

Hi all.

5 weeks post ablation and when I have a shower or stress I get severe palpitations after for 30 secs when heart is bouncing all over the place followed by eptopic beats fir 10 mins. I never had these pre ablation. does anyone else get this and does it sound normal? my arrythmia support are not very helpful in replying

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dadfrogboy
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14 Replies
KopEnd profile image
KopEnd

I am hearing more and more cases of people like you who are experiencing different or worse symptoms after an ablation. Frankly I would think twice before having one. I rather stay as I am now living with ectopics than having to experience new unknown symptoms. Wish all the best and hope it is just a temporary thing.

dadfrogboy profile image
dadfrogboy in reply toKopEnd

I'm pretty confident that the majority of ablations are worthwhile and im guessing my recovery is just taking longer than hope. I would always be guided by the clinical experts. but its certainly useful to be aware of all the possible outcomes before having an ablation

Avrnt profile image
Avrnt in reply todadfrogboy

It's also dependant on who does the ablation . I was blessed to have Dr Edward Rowland who maybe has retired or does private in UCH London. Fiona ex cardiol ward sister

sheffbk profile image
sheffbk in reply toKopEnd

I don't like to say it, but there seem to be many more stories of ablations not giving hoped for results than otherwise - is this just because the successes go away happy and are not heard of again, or?

I think ablation success rates as quoted by electrophysiologists are high, (eg 70%, 90%) but I fear their criterion for success may be low. Furthermore, many of the early trials had no long term follow-up, even for as short as 2 years.

We need more data - there are thousands of patients to collect it from.

I do know that quality of life for some with palpitations is so poor that even a partial success is useful -- so good luck to all having the procedure.

MikeThePike profile image
MikeThePike in reply tosheffbk

I think you make a very good point. Ablation is stated as a hugely successful procedure with low risks but we only ever seem to hear the horror stories. I would like to hear more experiences of people who have had ablation for ectopic and have not had any recurrences, who performed the ablation and where the had it done.

LCM79 profile image
LCM79

Hi, feeling the same as you right now. Had my ablation (partially successful) a month ago and now suffering horrible ectopics pretty regularly- far worse than before the procedure. The arrhythmia nurse advised me today that it’s difficult to predict if they’ll disappear over time. Some people’s disappear, some people’s don’t. Not what you (or I) want to hear but I guess it’s a bit of a waiting game. Best wishes for your recovery.

dadfrogboy profile image
dadfrogboy in reply toLCM79

interesting, i do think most things do settle down after a while, let's hope that's the case. I am getting more relaxed with them now and I do think anxiety and awareness of them doesn't help. Good luck.

Bladerunner777 profile image
Bladerunner777

I complained of similar issues to my EP after my 3rd ablation. His response was that your heart experiences a lot of stress during an ablation and PVCs (as we call them in the US) are not uncommon for a period of time. Mine lasted about 6 weeks.

dadfrogboy profile image
dadfrogboy in reply toBladerunner777

Good to hear and mine have reduced a lot now thankfully I know they are not serious but they are certainly unpleasant

44deano profile image
44deano in reply todadfrogboy

Hello I had my ablation on Friday and I've been having flutters ever since Ive been told this is to be expected I hope mine calm down soon

Nods profile image
Nods

I hope you're OK. Had my ablation for AVNRT five years ago. So glad I had it done, yes I experienced the same thing. It does settle down

TracyAdmin profile image
TracyAdminPartnerArrhythmiaAlliance

Sorry to hear that your are currently experiencing palpitations following your ablation. Visit the Arrhythmia Alliance website for informative resources or videos heartrhythmalliance.org/aa/... or call the helpline 01789 867 501 for further advice. Kind regards

Oldladyw profile image
Oldladyw

I had an ablation in 2014 for SVT and did experience ectopic beats and flutters after, but the heart is healing and they are to be expected. I still experience them, especially with stress, but no return of SVT. Their presence could be due to scar tissue. Not going to lie, they cause me anxiety but have been assured they're not dangerous. Speak with your EP about meds that might help. Best of luck!

Avrnt profile image
Avrnt

I'd get to Dr. I found clinical nurse specialists poor and I'm a nurse. Don't panic . My Registrar told me to relax and not to focus on heart beat as in the early days post ablation I got tachycardia then I'd have panic attack . It all settled and I'm ok . Hope that helps. Fiona

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